February 26th, 2024 5:32 pm

Are you there yet?

By |2024-02-26T17:32:57+11:00February 26th, 2024|Categories: Blog, Help, Manage, My Health Story|Tags: , , , , , |

Are you ready to punch the next healthcare professional you see who asks, 'Tell me your story'? Are you sick of asking for your health information, searching for it, collating it, or sending bits and pieces of yourself all over the place?

September 7th, 2023 12:50 pm

Is Symptom Tracking Your Road Map to Better Days?

By |2023-09-07T12:50:14+10:00September 7th, 2023|Categories: Blog|Tags: , , , , , |

Soula Mantalvanos (me!) as a guest contributor on MoreGoodDays. If you're living with fibromyalgia, you'll know first-hand how the experience forces you into constant symptom tracking. What’s this niggle? Is this [...]

September 7th, 2022 11:52 am

A Venetian Refuelling (part 2)

By |2022-09-07T11:58:48+10:00September 7th, 2022|Categories: Blog|Tags: |

While 'researching' places to eat as I sat by the canals drawing, Theo accumulated excellent bearings for Venice's delightful geographical maze. This helped us find the shortest way around the place when we needed it as we're both always concerned about how my up-time is managed. Theo gathered an impressive list of food recommendations, as mentioned in the full report of our Italian trip, Venetian Refuelling (part 1).

May 8th, 2022 1:52 pm

Keeping up my Stamina

By |2022-11-27T15:30:37+11:00May 8th, 2022|Categories: About, Blog, Living|Tags: , , , , |

I was going to title this blog Fatigue, but after reviewing it repeatedly, I decided to title it Stamina instead. It took me years to get to 'managing'. Now I have transitioned to pacing. As stated in my previous post, I'm living now. I'm not in a passive state watching and being attacked by an unpleasant experience. It wasn't easy getting to the state of 'management'. There are so many 'have to' activities – we can't avoid these. When I explain my 'have to' activities such as showering, making a coffee, sitting/standing all day, dressing, etc., people look at me bewildered, but you'll get me. Until this fight is experienced, one can't understand that day-to-day activities can strip your energy and count as 'activity'. It feels insane when faced with this realisation. But I have found a way...

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