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Soula and Theo interview on Gail Zahtz’ Health and Design blogtalkradio show

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Gail Zahtz PromoFor those that missed my live interview today with the brilliant Gail Zahtz on her Health and Design blogtalkradio show, you can listen again here.

The plan was to talk art, design, and pain advocacy but we weren’t about to fit all that into two hours, and especially not when Theo joined in to add his valuable perspective about living with someone who has chronic pain. Continue Reading

ABC Radio National thank you thank you thank you

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Finally some accurate coverage and attention. WorkSafe, I hope you were listening, ignore Chronic Pelvic Pain no more!

Honestly, I cried listening to this on Wednesday. Nothing like empathy and understanding after years of pain and hunting for diagnosis and proper treatment. So for anyone who’s (understandably) thought ‘is so-and-so really in pain? I just don’t understand’, please listen to the following 38 minutes.

The world of pelvic pain specialists have jumped on this wonderful exposure, Wednesday was a day that will be marked in medical history. It’s given all sufferers a voice and most importantly an audience. I have a hunch it’s going to take WorkCover a while to acknowledge the issue but I’m going to do my best to change that. I know it’s a long shot but there are people with this pain at home, unable to get up and feed/dress themselves without support because WorkCover have chosen to eliminate ‘chronic pain’ from their assessment guidelines.

None of my treatments have been supported, my support for the rest of, what would have been my working life ended, my impairment found to be 0% (even with an implant scar). I’ve been investigated (poorly I might add) and now left with about 9 hrs of scattered up time a week, having invasive treatment, and completely reliant on Theo’s undivided attention and help, with 0$ support. Of course I’ll do it, but I paid a WorkCover premium and expected it to support me if I hurt myself at work.

Please feel free to share the email. Thank you ALL for your support (well except for WorkCover).

Listen now or Download audio

Broadcast: Wednesday 6 February 2013 9:05AM (view full episode)

Imagine not being able to sit down, go to work or look after your kids because of an overwhelming pain in your pelvis. One of our guests, Vanessa Watson, experienced excruciating pelvic pain for several years and it’s radically altered her life. Vanessa’s story is not uncommon but as the causes for pelvic pain are complex; some women don’t receive adequate medical treatment. So what is known about the causes and could medical treatment and services improve?

Guests

Bettina Arndt
Social Commentator
Dr Susan Evans
Gynaecologist and Pain Medicine Physician
Vanessa Watson

Credits
Executive Producer Julie Browning

Presenter Natasha Mitchell

Read more…www.abc.net.au

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

Pain Train my online health record

Imagine your specialist knew this much before your first appointment…

Pain Train my online health record

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