April 26th, 2012 1:07 pm

Now let’s get this straight…

By |2017-12-12T14:48:53+11:00April 26th, 2012|Categories: About, Blog, Living, The pain|Tags: , , |

So, you think you can see pain hey? Or rather your understanding is, if you don't see it then it's not there? Please read on because people like you drive me a little batty... "Pain is invisible!!!"... ...I know, I know, it's shocking and many won't believe it, ever, but it's true... Seen me smiling? It hurts. Seen me having coffee with a friend? It hurts. Seen me walking up the street? It hurts. Seen me having a glass of wine? It hurts. Seen my online social activity? It hurts doing that. Heard I went away for the weekend? It hurts... more. Did I email you? It hurt...

March 5th, 2012 6:50 am

Five years on…

By |2017-12-12T15:14:29+11:00March 5th, 2012|Categories: About, Living|Tags: , |

  • It took five years for Facebook to make a dime and it took five years to reach seven hundred million worldwide users.
  • It would take 5.4 years at Mach 1 (0.34 km/sec) to get to Mars from Earth
  • Willow the cat went missing in Colorado during a house renovation. Five years later, miraculously, the feline was picked up stalking the pavement in Manhattan in New York City and is being reunited with his owners 1800 miles away.
But my point, folks, is that it's taken 5 years to find and shut my pudendal nerve up...
January 24th, 2012 3:51 am

How do I do it?

By |2017-12-12T15:12:29+11:00January 24th, 2012|Categories: About, Learn, Living, Personal resources, Tips|Tags: , , |

Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I'll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!): •I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do •I learned and practice the word pace •I'm more selfish •I say "I can't" and recently I've even stopped apologising because "I can't"! •I let go of obligation (actually I need to work on that one) •Keep any visit short, close, soft (not too many parties unless you can walk away) •I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash •I have a daybed and made a 'dayspace' no where near a television or my bedroom •I have a dog, he's one of my biggest aids

January 23rd, 2012 9:07 pm

My family, Theo, Origin of Image and Zephyr

By |2017-12-11T11:28:17+11:00January 23rd, 2012|Categories: About, Creativity, Living, The pain|Tags: , , |

There isn't one single reason I can give for 'coping', I think a few things play a role. The biggest of all, I believe is my own brain's chemistry and built in ability, something I don't believe I have control over and was born with (and how greatful I am for this ultimate survival gift!), but coming in second, or even on par, is my husbandly support, Theo. I don't know what I would have done if Theo hadn't understood my pain and my eratic injury and hadn't supported me 200%. Seriously there were days I thought I was crazy...

November 21st, 2011 9:23 am

Pain loops, syndromes and an over protective brain

By |2022-09-05T11:26:11+10:00November 21st, 2011|Categories: About, Creativity, Funnies, Manage, The pain|Tags: , |

How many definitions for pain signals are out there? It doesn't stop and I have to be really honest here, it all sounds like hogwash for a person who was unstoppable and prior to her injury had the stamina of a bull (as a friend once described me).

May 22nd, 2011 8:36 am

The way relief continued…

By |2022-09-05T11:26:11+10:00May 22nd, 2011|Categories: About, My treatment|Tags: , , , , |

A few months into my implant and I felt like I was human again... my senses were back and it was incredible!! That thick pain fog was lifted and I could taste, smell, see, concentrate, focus, remember, listen, think, plan, dream, enjoy, laugh, read, oh what bliss!!!!

February 20th, 2011 7:06 am

The way relief started

By |2023-02-17T10:32:01+11:00February 20th, 2011|Categories: About, My treatment|Tags: , , , , |

In my case, the procedure was much less complicated as I didn't need the leads to go through the spinal canal but rather along my sacrum and coccyx. There is a trial period in which the unit sits outside and is 'plugged in' via the leads that, yes, are sticking half out/half in your body. Look I know that might sound gruesome to some but please... we're talking about chronic pain here... it was NOTHING. A cinch... it worked, it's in now and giving me great pain relief.

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