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Cake, Jennifer Aniston

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(Official site www.cakemovie.net)

Story

Claire Bennett (Jennifer Aniston) is in pain. Her physical pain is evident in the scars that line her body and the way she carries herself, wincing with each tentative step. She’s no good at hiding her emotional pain either. Blunt to the point of searing insult, Claire’s anger seethes out of her with nearly every interaction. She has driven away her husband, her friends — even her chronic-pain support group has kicked her out. Continue Reading

Injured workers rising above

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(By Rosemary McKenzie-Ferguson)

Bags of Love Op Shop will open on the 31st July 2015

It has taken a lot longer than any of us at the Centre would have liked- however after many tears and a lot of frustration and loads of laughter and an rather risqué fashion parade the Bags of Love Op Shop will open on the 31st July 2015 .

It is yet another first in the wonderful world of workers compensation as the Bags of Love Op Shop is run completely by injured workers for the benefit of injured workers as each of them rebuild their lives in ways that has never been seen or done before.

“Bags of Love” aim to provide basic food supplies as often as is possible to ease the burden on the injured worker and the injured worker families.

There won’t be any speeches, and there won’t be any ribbons cut and the Australian stock market won’t have a sudden movement to indicate the importance of the opening of the OP Shop. Continue Reading

‘Ouch’ just doesn’t cut it!

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I-feel-so-frustratedAnd neither does repeating, ‘it burns’, ‘it itches’, ‘it’s like fire’, ‘I get spasms’, or the various other words people in pain have to repeat for each consult in the effort to be understood.

Pain Train’s whole purpose is to help patients and their pain management teams communicate beyond these basic words. Pain Train saves the patient the additional pain of having to repeat their history and other related details at each appointment.

Pain Train offers patients a way to also show their friends and family their profiles in the hope they can also better understand their loved one’s experience. Continue Reading

Ambrosia

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Ambrosia

Thank you PainAustralia and Chronic Pain Australia

You are invited to attend a special preview of a new feature film ‘Ambrosia’ by director Rhiannon Bannenberg presented during National Pain Week at Fox Studios on Thursday 23rd of July.

The film which deals with the psychological impact of chronic pain on a young woman’s life has been selected by hosts Painaustralia and Chronic Pain Australia to be a key event in the annual week-long festival.

National Pain Week 20 – 26 July aims to remove the stigma and silence around the invisible burden carried by those who suffer chronic pain and their carers. This screening of Ambrosia which adds to an Australia-wide line-up of activities will appeal to a very broad audience.

Tickets can only be purchased online before the event. Tickets will not be available on the night. Continue Reading

Peripheral Stim messing with my bone density score

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How gorgeous does my spine look with that dangling necklace!?

Well, that’s what I thought until I was read my gloomy bone density score;

-2.6

BoneDensity002What does that mean? It means thinning bones at the age of (then) 43. That’s not good, in fact I landed, once again, in that unique and very small group of patients with a rare condition.

I investigated (surprise!) and found my mum’s bone density was better than mine… my mum is 70. Worried? Yep. Continue Reading

Arthritis & Osteoporosis WA, Making Sense of Pain June 26 – 27, 2015

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Calling all Health Professionals
“MAKING SENSE OF PAIN”
Our fourth inter-disciplinary workshop

Register now.
Early bird registrations close on 12th June!

Presenters & RegistrantsWe offer health professionals a unique opportunity to update their knowledge and skills and to effectively transfer them into their clinical practice setting.

Our experienced team, which comprises “pain champions” together with experienced clinicians and researchers, present a unique learning experience conducted in a user-friendly environment.

Date: Friday 26th – Saturday 27th June, 2015.

Presenters: Ms Melanie Galbraith (Physiotherapist), Assoc-Professor Vance Locke (Academic Psychologist), Ms Jane Muirhead (Occupational Therapist), Dr John Quintner (Physician in Rheumatology and Pain Medicine), Ms Mary Roberts (Clinical Psychologist).

Pain champions: to be announced

Venue: Wyllie Arthritis Centre, 17 Lemnos St. SHENTON PARK WA

[N.B. This workshop is fully catered and FREE on-site parking is available.]

For details and to Register or contact:
Melanie Galbraith, MelanieG@arthritiswa.org.au or
John Quintner, jqu33431@bigpond.net.au

View information about previous workshops

Dr Doidge, Are Some Brains More Plastic than Others?

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I never shop from my phone, but given Theo and I were away for the weekend (researching our next phase of life), I felt it was worth the risk responding to The School of Life‘s Dr Norman Doidge event and booked our two tickets.

Glad I did. The event was sold out within the week and over 300 people were on the cancellation list.

In 2011, after my peripheral stimulation device was implanted (and having my reading ability restored), I reached for  Dr Doidge‘s, The Brain That Changes Itself, and grasped the idea to contact Prof Lorimer Moseley who was referenced within the book.

That idea led to my diagnosis.

So my mind ran. What might happen if I actually met Dr Doidge?! Continue Reading

Appearances can be Deceiving

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The invisible characteristic of chronic pain makes up a huge part of chronic pain’s battle.

This very invisible quality that I loathe for not communicating my hell, but love because I can somewhat fool the general public and resemble my old self, also provides another horrendous scenario. It allows the blatant abuse from insurers who use the invisible quality to their advantage avoiding the payment of rightful compensation to those owed it… yes, those like me!

But my point with this post is that so many would label Frida’s wardrobe as ‘beautiful’ when really it was a communication method that screamed her daily torment. Need I state, I so relate to this…

Original post Michael Hoppen Gallery

Frida by Ishiuchi Miyako (2013) is a photographic record of Mexican artist Frida Kahlo’s wardrobe and belongings. Following Kahlo’s death in 1954 her husband Diego Riviera began placing her personal effects into the bathroom of their Mexico City house, “The Blue House“, which later became the Museo Frida Kahlo. Riviera gave instructions that this room should remain sealed until fifteen years after his death and it in fact remained unopened until 2004 when the museum decided to organise and catalogue the contents. Ishiuchi Miyako was invited to photograph these artefacts, over 300 unseen relics of Kahlo’s life.Fridas Leg36-s- Continue Reading

An Integrated Approach to Pelvic Pain

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Interview with Robert J. Echenberg, medical advisory board ICA.

ICAUpdate-(2015-Spring)Echenberg-1Dr. Robert J. Echenberg is the founder of the Echenberg Institute for Pelvic and Sexual Pain in Bethlehem, Pennsylvania. Previously known as the Institute for Women in Pain, Dr. Echenberg’s practice is one of the first privately owned multi-disciplinary practices exclusively specializing in assessment, diagnosis, and treatment of chronic pelvic pain (CPP). Since its inception in 2006, the Institute has treated more than 1,200 women and a growing number of men with pelvic and sexual pain disorders from 25 states and five countries.

A member of ICA’s Medical Advisory Board, Dr. Echenberg is the author of the book Secret Suffering: How Women’s Pelvic and Sexual Pain Affects Their Relationships. Dr. Echenberg spoke with ICA Update about IC and overlapping conditions, why education must come before medication, and ways in which the medical system must change to address the needs of patients with overlapping chronic inflammatory and pain conditions.

An Integrated Approach to Pelvic Pain was published in the current edition of the ICA Update.

The Interstitial Cystitis Association (ICA) is the only nonprofit association dedicated solely to improving the quality of healthcare and lives of people living with interstitial cystitis (IC).

Interview—Mark Toner
Mark Toner is editor of ICA Update

Talk about how IC fits into the variety of overlapping conditions you treat.

I started this program in 2001 when asked to develop a nonsurgical approach to female pelvic pain through our  department of obstetrics and gynecology. We knew that all over the country young women were receiving multiple invasive diagnostic and therapeutic procedures for persistent and otherwise unexplained painful symptoms in the pelvic region (between the belly button and mid thigh). I found early on that IC was a cornerstone, if not one of the most common triggers of pelvic pain.

There’s a huge spectrum of pelvic pain patients, both male and female. Many conditions within the pelvic organs such as IC, endometriosis, and IBS are common organ or visceral generators of pain within the pelvis, but what I soon realized is that we were generally not even thinking of all the muscles, ligaments, and nerves that almost always contribute to the pain itself.

Much of the literature and my own experience since 2001 points to bladder pain syndromes being at least part of the picture of chronic pelvic, genital, and sexual pain about 80 to 85 percent of the time. That’s a huge number, and chronic pelvic pain translates into tens of millions of individuals in the U.S. alone. Not only are multiple parts of the anatomic pelvis involved in persistent painful pelvic symptoms, but there are also many overlapping inflammatory issues and other pain syndromes commonly associated with CPP. These include migraine, fibromyalgia, TMJ, multiple chemical sensitivity syndrome, all the autoimmune disorders, and others. IC patients are among large numbers of people suffering not only pain, but also fatigue, sleep disorders, hypersensitivities, allergies, and other slowly disabling illnesses that plague our health care system. Continue Reading

This Train is Bound for… Wholeville: A Travel Guide for the Perplexed

Author:

Who would have thought that pain and the design process would have found a way to merge in my life. Design is however all about communication, and being a creative communicator I got wondering about how one can document their pain journey.

I also believe from my experience with chronic pain that the area is poorly provided when it comes to expression and language. How is it possible for a patient to describe their situation when their situation has no current definition or current way to be described?

So I thought of a concept! I called it Pain Train and two wonderful things were conceived from it. My soon to be publicised online resource, and a brilliant research paper by John Quintner and Melanie Galbraith.

Pain professionals, John and Melanie, are Pain Train’s first conductors and they have applied their exceptional chronic pain knowledge to the concept with their research paper, This Train is Bound for… Wholeville: A Travel Guide for the Perplexed (download or read below).

John Quintner and Melanie Galbraith are aiming to give people in pain sufficient knowledge so that they can meaningfully engage with their respective health care professionals.This-Train-is-Bound-For-Wholeville

Continue Reading

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Definitions of pain

What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…

Pain Train my online health record

Imagine your specialist knew this much before your first appointment…

Pain Train my online health record

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