…When Stephen Waxman was a student at the Albert Einstein College of Medicine in the early 1970s, he became interested in pain—how people feel it, how the body transmits it, and how, as a future neurologist, he could learn to control it. Later in his career, after his father was in the final stages of agonizing diabetic neuropathy, he became obsessed with helping patients like his dad, who could find no relief from their pain. “We simply had to do better,” he says. Continue Reading
You might recall me plugging the Pain Down There DVD – an extensive resource for women created by Robert Echenberg, Karen Liberi, Alexandra Milspaw, and Stephanie Yeager.
Now the team have taken this a step further, turning the DVD into an online, supported program.
The idea is to offer support and pain management in small groups of 10 – 15 women who start the program at the same time. The video content is released to them online and they also get to meet as a group online with Stephanie as their personal health coach. Individually they have the option to meet with the doctor and PT – all via video conferencing.
Can virtual reality really soothe pain? Jo Marchant meets the doctors who say yes, and who hope this is a solution for the country consuming 80 per cent of the world’s opioid supply: the United States of America.
“It’s like a crawly feeling inside,” says Judy*. “You get hot, then chilled, and you feel like you want to run away.” The 57-year-old has short dark-grey hair and a haunted expression. She’s breathless and sits with her right leg balanced up on her walking stick, rocking it back and forth as she speaks.
Judy explains that she suffers from constant, debilitating pain: arthritis, back problems, fibromyalgia and daily migraines. She was a manager at a major electronics company until 2008, but can no longer work. She often hurts too much even to make it out of bed. Continue Reading
I can’t recommend Dr Susie highly enough. I wish I had online physical therapy advice when I felt lost, unable to commute and in need of someone who could understand my pain experience.
Dr Susie really gets pelvic health issues and especially for males – oh hoorah, finally someone to help the boys!
Don’t hesitate to organise an online skype session, Dr Susie has a load of support and experience on offer.
(Post written by Dr. Susie Gronski, DPT, PRPC. Doctor of Physical Therapy. Expert pelvic health advice without the jargon)
Soula Mantalvanos has been dealing with pelvic pain for over nine years. She’s an aspiring creative living in Australia. An artist who battles Pudendal Neuralgia through her words & artwork. Soula’s a die hard advocate for persistent pelvic pain sufferers.
When I first had my accident in 2007 and literally landed in chronic pain, the last thing I expected to hear at any appointment was that I had to manage and coordinate my own treatment.
It was confusing when I was asked what treatment I thought would be best for me to try next – wasn’t the professional meant to guide me?
But a decade later I now finally realise that I was driving my pain management and it was in fact my direction and feedback – from my unique pain experience that was making the difference.
Without the patient reporting their exact experience – which we now know is unique – there’s no way to plan or move forward.
I can’t imagine the complexity a professional faces when trying to help a patient who is unable to articulate their pain experience. But I know this is the general scenario and I know this because I experienced the difficulty of remembering, talking, thinking, documenting, reporting and navigating each minute while living with chronic pain. Continue Reading
My understanding of the campaign is that the ADF in no way suggests pain killers are not necessary – many Australians require their medication to manage their health issues – but patients should investigate other options and be informed about the effects of taking these medications long-term. They should not be recommended as a first resort.
Within a few months of taking chronic pain medications, I realised it was not a long term plan for me and was thank full to be able to find other forms of treatment that could help me survive chronic pain day-to-day.
(Excerpt from mamamia.com.au. Story by Caitlin Bishop)
Soula Mantalvanos was 37 when she was sitting on a fit ball and it burst. She landed on concrete, hard.
“It was a split second. It was bone to concrete and it felt that way. I was in shock and then thought ‘I can’t move, I can’t move’. Slowly, I turned over and crawled to the carpet,” Soula told Mamamia.
Before then, Soula walked everywhere. She lived with her partner in the heart of Collingwood, Melbourne. They would walk to see friends, walk to dinner. Soula did yoga four times a week. She could hold a shoulder stand for eight minutes. Continue Reading
Have you all been holding your breath as I have the last couple of months? Well, you can breath out and feel happy for me – I got paid!
The financial ease is beyond documentation even though it falls far short of what I’m due (a most usual scenario with injured workers).
The fear and doubt that the compensation won’t continue will be ever-present. Being treated repulsively for years can never been forgotten – it’s a kind of irreversible trauma.
I will forever doubt these monsters. Trust was never incorporated into this relationship.
So am I settled, is it done, and am I feeling ecstatic?
Nope. There’s grief and anger to get through now. Grief for the life we lost due to the insurer’s dirty tactics. Anger for having to unnecessarily begin a whole new life miles away from everyone and everything we love. Continue Reading
“…that they’re able to be so sure of themselves.” wrote Franz Kafka in The Trial.
I really relate to this quote right now because I just can’t make sense of my current pending status.
I’ve now been waiting 8 weeks for 5 professionals to answer two questions… that an assigned WorkSafe insurer had the right to set.
That’s bloody confusing in itself.
Further to, I’m wondering a couple more things:
how these 5 professionals, the Convenor, and the staff at Medical Panels convince themselves this process is helpful to me and other injured workers, and
whether they enjoyed their Christmas as much as I didn’t
I called the Medical Panels to follow-up the report and express my anxiety on the matter. I’m feeling I’m going to explode. I’ve been breathing in so much my stomach feels like it has rocks in it and my neck feels like it’s fused with my shoulders. Continue Reading
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Definitions of pain
What is Pudendal Neuralgia (PN)?
Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggravated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.
What is Neuropathic pain?
Neuropathic pain is the result of an injury or malfunction in the peripheral or central nervous system. The pain is often triggered by an injury, but this injury may or may not involve actual damage to the nervous system. More…
Pain Train my online health record
Imagine your specialist knew this much before your first appointment…