Soula shares her frustration with pain management and how it lead her to founding Pain Train.
In this short video Soula also provides her insight on how people experience pain as well as the personal difficulties she faced communicating her journey at each appointment.
Dr. Susie and I have established quite a fab connection over the past year or so.
We teamed up to help people with chronic pain with our own various ways – Dr. Susie providing her professional knowledge (and awesome down to earth approach), and I providing my patient input (Dr. Susie loves my Pain Train).
I jumped at Dr. Susie‘s invitation to write the foreword for her book, Pelvic Pain: The Ultimate Cock Block – in fact it was an honor and a pleasure.
From what I hear through my site, men have a more difficult task navigating chronic pain and speaking up about their issues – yes, much tougher than we have it ladies!
So to my dear male followers, don’t hesitate! You can get this book right now on Amazon and be on your way to managing pelvic pain.
And to Dr Susie, thank you so much for writing this much needed resource and for inviting me to be a part of it.
About the book
Pelvic Pain: The Ultimate Cock Block: A no bullsh*t guide to help you navigate through pelvic pain
You woke up one morning expecting a hard on, but instead, all you felt was dick pain. You’re thinking maybe it was a weird sex position or that sports injury from the other day. ‘‘No biggie, it’ll go away,’’ you think to yourself. Continue Reading
Learn about chronic pelvic, sexual and genital pain, and integrative treatments.
Presentations by doctors, physical therapists, counselors,health and
wellness experts and patient advocates.
*New this year: Afternoon break-out sessions for patients and caregivers.
Register early as space is limited!
Date & time:
Saturday September 30, 2017
Registration and light breakfast 8:30AM-9:00AM
Tim Gill Center for Public Media
315 E Costilla Street Colorado Springs, CO 80903
RSVP, Speaker List and Tickets:
available on our Event Page at www.bridgeforpelvicpain.org
This is exciting. I’m republishing my post from way back when I just began to manage some yoga again.
I have maintained Dustienne’s program – albeit a small 20 minute portion – it’s still mammoth for me.
Dustienne has now produced more pelvic specific yoga videos and although I might not dare try anything new just yet, I had to share these with you all as they sound great:
Listen to your bod… go slow!
(Read the original post) Continue Reading
What sets “Making Sense of Pain” apart from other Pain Management workshops and seminars? We show you how to put this information into practice and improve your interactions with patients to ensure more positive outcomes.
This workshop is dedicated to the memory of Robert Elvey [1942-2013], a WA pioneering physiotherapist.
|21st Sep 2017 to 22nd Sep 2017
|08.30 – 4.30
|Registration Closing Date
|15th Sep 2017
Wyliie Arthritis Centre
17 Lemnos Street Shenton Park WA
About the venue
Lunch, morning and afternoon tea provided.
John Quintner & Melanie Galbraith
John: 0419956418 firstname.lastname@example.org
Melanie: 0405963658 MelanieG@arthritiswa.org.au Continue Reading
You’ve all heard the impact Prof Lorimer Moseley made on my pain journey – well my diagnosis actually.
If it weren’t for him I wonder how much longer I would have been left searching for the reason behind (pardon the pun) the pain. It took 4.5 years!
Lorimer’s research continues and this time he’s teamed up with some fabulous physiotherapists to make a lighthearted – but still serious, animation about chronic pain.
I’m thinking it might be relevant for followers to see where I moved to. So, here you go – welcome to Queenscliff!
It has been a huge transition (by now you’ve heard about it) but moving from my previous (20+year) city life to this seaside town is quite a change!
Kind of forced sea-change! Continue Reading
My sacral stim and I have known each other for a full 17 months now, so I felt it was the right time to make some comments and reflect, again, on this self management business.
Yes, the sacral stim is making a huge difference.
Now remember – I’m talking about my pelvis, my pain experience, my brain, my nervous system and my genes
Three (of my never-ending) realisations for living with chronic pain are that I have to:
- accept that my life and I have changed – forever
- commit to a new way of living, and
- make the sacrifices that it takes to self manage
Chronic pain really blurs life so it takes time to realise the impact (positive or negative) of any treatment or change of activity.
Time seems shorter for me. When I compare myself with full capacity humans, I feel I achieve less and the physical cost is greater.
Not the best value! But it’s what I can get.
The good news is: Continue Reading
No, I’m not about to preach about finding God. I mean the other God – your health professional.
I’ve had many dilemmas trying to manage chronic pain.
The obvious ones relate to seeking appropriate treatment and managing life – money, bills, commitments, family, friends… if you’re reading this, you probably know how that paragraph ends.
But I’ve had an additional, personally inflicted dilemma and that’s to make something of my situation and further still, have the experience validated.
I don’t think we can control self inflicted dilemmas. In fact it’s hardly a dilemma, it’s more like a personal trait that I owned long before my injury.
pudendalnerve.com.au‘s vision is focused on positivity and I’ve adhered to my mission to help others with chronic pain (and injured workers) through my personal experience.
I’ve taken that one step further by founding Pain Train – an online health record website for people exactly like me. Continue Reading
It all started with emails. I bet most medical professionals felt alarmed as email communication began with patients.
Wasn’t the existing scenario suitable enough? Call the receptionist – make several attempts to get through, rattle off suitable dates, wait for that day to come around, get to the waiting room, sit, sit and then finally release that conversation that’s been swirling in your head… if that’s even possible in the allocated 15 minutes.
I’m sure some medical professionals still appreciate and stick by this scenario. I know quite a few that do.
Isn’t life short enough?
Thankfully, my pain specialist (Dr Nick Christelis), and his team have progressed further, throwing their whole practice (Vicpain) on as many social media platforms as they can. Continue Reading