February 6th, 2019 6:04 pm

Out With the Sacral, In With the Spinal (part 1)

By |2023-02-17T10:32:00+11:00February 6th, 2019|Categories: Blog, My treatment|Tags: , , , |

Then things got even more strange. There was heat, radiating heat where the IPG is, in my face and also other strange feelings that not only added to my pain issues but it made me turn my stim off, more than on! Weird.

December 13th, 2018 12:45 pm

Spinal Cord Stim Trial Day 6

By |2023-02-17T10:32:00+11:00December 13th, 2018|Categories: About, Learn, My treatment, Professional Resources|Tags: , , , , |

I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!

April 23rd, 2017 12:20 pm

Dr Susie Gronski: How One Artist Used Her Hurting Strings To Stitch Back Her Life

By |2017-04-23T12:20:04+10:00April 23rd, 2017|Categories: Advocacy, Blog, News, Online|Tags: , , |

I can't recommend Dr Susie highly enough. I wish I had online physical therapy advice when I felt lost, unable to commute and in need of someone who could understand my pain [...]

July 11th, 2016 4:54 pm

Resources for Treating Chronic Pain by the Pain Specialists Australia (PSA) …MY pain team!

By |2019-08-26T17:53:09+10:00July 11th, 2016|Categories: Learn, Professional Resources, Read, Tips|Tags: , , , , , , |

Forgive my bossiness but this post comes from a desperate experience that I lived for 4.5 years. That’s a long time for someone with increasing chronic pain levels and not much hope. [...]

August 11th, 2015 10:35 am

Back on the treatment trail

By |2023-02-17T10:32:01+11:00August 11th, 2015|Categories: Help, My treatment, Professional|Tags: , , |

So someone got talking to someone on a plane (you know how that story goes, your eyes begin to glaze over because you're in pain thinking 'if this friend tells me I need to meet someone and sustain a new friendship, I'm going to punch him' - but in the end, it works out that you wished you had sat next to that someone on the plane, and you meet that person and you wished you had met them a very long time ago (like eight years ago for me).

March 30th, 2014 3:05 pm

My Peripheral Stimulation implant

By |2023-02-17T10:32:01+11:00March 30th, 2014|Categories: About, My treatment|Tags: , , , , |

I begged Professor Teddy to do anything, even to chop my coccyx off but he (and his backed up opinions) suggested not to go the invasive path just yet (removal of the coccyx had also not been very successful in treating chronic pain), we had an option for an implant, a treatment that was reversible, it made more sense. To 'qualify' for a stim you have to go through a trial first. The trial period was two weeks and in that time I had half of two leads placed inside my body (yes this is a full anesthetic/operation), with the remaining half of the leads hanging outside my body connecting to a temporary unit. It's a risky period, one very highly susceptible to infection but it allowed me to test the device and its impact before we implanted the $60k (or so) unit. Am I grateful I had private insurance? You bet! My WorkCover insurer certainly wasn't going to pay, eventually dismissing the surgeons reports as not having providing enough information.

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