Dr Susie Gronski has been a My Health Story’s (MHS) Advisor and Friend for several years. I have been closely connected with Dr Susie Gronski since [...]
Creativity as a pathway to relief Living with ongoing invisible pain can be isolating and frustrating. Alongside my (very part-time) work as the founder of My Health Story, an artist, curator [...]
The fabulous Evelyn Hecht (and our comrade of the pelvic pain world), who created Pelvic Sense, has an invitation for you. If you are experiencing persistent pelvic [...]
Although pain management is the undercurrent of my life, it no longer rules my life activity. This is a tricky mind battle that underlies everything I do. [...]
I’m so disappointed in Adele Ferguson and Chris Gillett. I can’t believe this is an ABC story. Firstly, I do want to express my sadness for the [...]
Since investigating my DNA with Dr Valerio Vittone, I believe more that my health issue is not about chronic pain but rather about inflammation. I've reaped magnificent rewards since implementing recommended dietary [...]
I feel like switching the 'anniversary' thingy to a 'birthday.' I know it sounds oddly celebratory, but I also know that you have read stranger things on this website so remain unafraid to explore this latest idea with you.
'Pain is a unique experience' we've all heard it, and by now, most of us believe it. But, after viewing my personal genetic report, I'm now sure that pain is a unique experience. Perhaps it's not even pain for some of us. It's not for me! This genetics investigation exposed the elephant standing by my side the last 15 years – actually, it's been with me all my life but it took an accident to begin its stampede! Official diagnosis – not pain; it's inflammation. And it always has been!
Who wants to learn about pain? Who wants to have to learn about pain? Why should we? Are you over it yet? I am. But… [...]
Neurostimulation has been key in my management of pain. It's also satisfied my wish to find a way to be as self-sufficient with my management as I possibly can be. My first stim was a peripheral stimulation unit (leads under the skin) and that was implanted in 2011. I still have this unit as a backup. In 2015 I had a sacral stim implanted but that fizzed (in my opinion) within three years. So in 2019 I had the sacral stim removed and replaced with a spinal cord neurostim. WARNING: In the video, I talk about my experience and have a few Xrays pop up to demonstrate a little detail. If you're the squeamish type you may not want to see the images – they are small, however. Read key blogs about my stim implants experiences and adventures:
