December 12th, 2019 9:04 pm

FeetUp (Then Take a Seat)

By |2019-12-12T21:04:45+11:00December 12th, 2019|Categories: Help, Professional, Tips|Tags: , , |

My endless efforts to find a way to get back into regular yoga practice keep falling on their head. Pardon my pun... but I am hopeful FeetUp may help with that problem. Prior to living in the land of pelvic pain, I lived in the land of bliss practising yoga regularly – four times per week! For 45 minutes I was part dog, part warrior, a cat, a cow, even a pelican at times. I became a tree, saluted the sun and enjoyed many various poses. To end my routine, I'd slide up into shoulder stand (8 minutes), then send my toes passed my head in plough pose (for another 8 minutes) before unravelling to a corpse in Savasana pose. That was before I went for a walk!

November 9th, 2019 9:09 pm

Foam! I Found Foam!

By |2019-11-09T21:09:56+11:00November 9th, 2019|Categories: Learn, Personal resources, Tips|Tags: , |

Foam! I Found Foam! Am I excited today! As I progress this path of pain, I retain my non-negotiable pointers – one of which is my need for my custom made seating aid. I would love to ditch this damn thing from under my backside and from my clutch every time I go out for a seated event, but it's just too valuable for my capacity. Figuring out the big 'dangers in me' (remember we talked about DIMS and SIMS?) has been key to my pacing forward.

July 11th, 2016 4:54 pm

Resources for Treating Chronic Pain by the Pain Specialists Australia (PSA) …MY pain team!

By |2019-08-26T17:53:09+10:00July 11th, 2016|Categories: Learn, Professional Resources, Read, Tips|Tags: , , , , , , |

Forgive my bossiness but this post comes from a desperate experience that I lived for 4.5 years. That’s a long time for someone with increasing chronic pain levels and not much hope. [...]

September 21st, 2014 9:08 pm

Commitment, sacrifice and granting myself the right permissions

By |2023-01-26T14:46:01+11:00September 21st, 2014|Categories: About, Blog, Living, My treatment|Tags: , , , |

Last week, I attended my last acupuncture appointment and for the first time in over seven years, am therapist free. Hang on, I have to just repeat that: I am therapist free Did I ever think this day would come? Of course I did and I believe that's why I am here. I have had my moments, but what I didn't realise through all that heat and whilst pacing like a snail, was that each flare up and pain episode was actually not an indication that pain was here to stay, but rather that it was actually beginning to leave. Although just a difference of minutes initially, eventually I felt the flare ups spreading further apart. And with recognising that change and NOT increasing my capacity past a snail's shell weight, I began to make progress.

April 23rd, 2013 11:31 am

My ‘Fatty’ tail aint fat afterall!

By |2023-02-17T10:32:01+11:00April 23rd, 2013|Categories: About, Blog, My treatment|Tags: , , , , |

Closure really is something. Feeling like a niggling concern is finally put to rest can be so satisfying, it brings me such calm. Slowly, my pelvic chronic pain niggles are finding their place and providing me with the peace my body and mind needs so I can let go, move on and most of all feel my injury is clearly understood. I had another session with the wonderful Raffaele who continues to treat me fortnightly. I was ready to call the next nerve block last week but after yesterday I'm hopeful again and thinking I was in some kind of a flare. I can't expect (but I will!) that with my effective management flare ups will cease to happen. As I test my capacity and lift my full litres of milk occasionally, walk the dog and go out more often, I've got to expect at some point the body is going to say, 'hang on love, you're lifting too much milk!'

November 28th, 2012 7:56 pm

Take a seat… if you can!

By |2020-09-05T11:15:11+10:00November 28th, 2012|Categories: About, Blog, Learn, Living, Personal resources, The pain, Tips|Tags: , |

With Pudendal Neuralgia, or any other pelvic chronic pain issue, it can be impossible to sit pain free (let alone get away without a flare up). Of course, I'm no pro when it comes to seating, but I've learned a lot from my own experience and from listening to the 'ouch' in my pelvis. The seating I needed, was most often hand-made! (Have a look at the one my gorgeous father in law made, it's the stool with adjustable foot rest!) Although I've worn out, thrown out, tried and tested so many more seating aids, I'm showing the ones that have lasted or worked for a while. These are the ones I often resort to.

January 24th, 2012 3:51 am

How do I do it?

By |2017-12-12T15:12:29+11:00January 24th, 2012|Categories: About, Learn, Living, Personal resources, Tips|Tags: , , |

Absolutely nothing great about having to live by these rules but it certainly saves me alot of extra pain, I have more up time and, above all, I decided this is just temporary. I'll do what it takes to get by most comfortably (if I can dare to use such a word for a chronic pain site!): •I understand that everything I do counts, even a sneeze (ok they count alot!) so I make sure I pick and choose what I do •I learned and practice the word pace •I'm more selfish •I say "I can't" and recently I've even stopped apologising because "I can't"! •I let go of obligation (actually I need to work on that one) •Keep any visit short, close, soft (not too many parties unless you can walk away) •I email my WorkSafe case manager to eliminate hearing all unnecessary hogwash •I have a daybed and made a 'dayspace' no where near a television or my bedroom •I have a dog, he's one of my biggest aids

December 3rd, 2011 1:31 am

Who says I can’t travel?

By |2014-06-15T08:50:38+10:00December 3rd, 2011|Categories: About, Funnies, Living, Manage|Tags: , |

I know I might be clutching at straws again but at the very least 360 cities is some great distraction and very light in capacity cost. And it's great planning for next time I have some serious pain relief (like a nerve block). I'll be off like a rocket! Ok, maybe not a rocket but compared to the usual pace it'll feel like it.

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