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soula

Who am I going to be – Soula ‘a’, ‘b’ or ‘c’?

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_Sacral_stim

My new stim’s changed everything.

I’m grateful. Can you imagine if the whole process (from trial to permanent implant) hadn’t change anything?

In addition to the stim changing everything, I’m living a whole new life that Theo and I attempted to plan in great detail.

We’re trying to make me the best I can be so we can be… someway, somehow.

Life is unrecognisable and the path ahead is totally unfamiliar. To top that off, I need to figure out exactly how I can best be. I have choices.

Post op

After living with my sacral stim for six months, I can confirm the following: (more…)

Mark of hope?

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_ Mark of hope_Soula Mantalvanos QGW Lettered print exchangeQueenscliff Gallery & Workshop (QG&W) organised the Lettered print exchange.

A Print Exchange is when artists submit works to a set theme and they exchange each other’s work, each artist keeping a complete portfolio.

An exhibition is held and only a few of the editions are for sale.
(more…)

I made a gallery

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True! Theo and I made a huge life move as many of you have read.

Our transition began over a year ago when we escaped to Tasmania to figure out how to manage life with chronic pain.

It was the best thing we did even though terrifying at the time.

In just over a year, we have spent four months in Tasmania, returned to our dear Collingwood, sold our warehouse sanctuary, removed ourselves from our main business (as it was impossible for me to do the previous design work), planned a new lifestyle, and began a new venture with the utmost faith and backing of some very dear arty friends and some special few design clients.

Again, terrifying. (more…)

How can you know? There might be better treatment out there!

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I was sure. So positively sure.

I was miles better, my life was saved, I was no longer existing, I was living again.

I was sure that I was the best I could possibly be and that I’d received the best possible treatment for my type of pelvic pain.

But now, after a very successful sacral stim trial (of which I’m best writing more about later), I am left to wonder why I made up my mind and what it was that convinced me I was ‘doing great’ and reached the ‘best treatment‘.

I wasn’t, I hadn’t.

I know that living with pain for over eight years reduces confidence and belief. It even (warning, I’m going to use the C word), discourages hope for a cure. But how could I have assumed I found my best self for four years (nearly five actually, gulp!)? (more…)

I’m part of Bridge For Pelvic Pain’s Advisory Committee

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Bridge for Pelvic PainAnd I’m most honoured! To be recognised for my pelvic pain advocacy is one very exciting aspect, but to be invited to be part of a committee with a global vision, is quite an additional excitement. It appears my pain experience will definitely make a difference to others.

About Bridge For Pelvic Pain

Mission: Our mission is to connect the global community of chronic pelvic and sexual pain patients to resources, education and hope through an integrative approach. Vision: To bring hope, resources and knowledge to the pelvic and sexual pain community worldwide. (more…)

Pelvic Pain Foundation of Australia’s Melbourne launch

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PPA Launch - Soula, Lorimer and Anne-Florence

After 4.5 years and desperate, Soula took a stab and emailed Lorimer Moseley who kindly replied and suggested she contact Anne-Florence Plante. Anne-Florence diagnosed Soula instantly.

Melbourne launch March 24, 2015

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA) Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014.  I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I’ve ‘e-met’ many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN.

Needless to say, last night I went on a magic carpet ride! (more…)

Intermission, my solo exhibition in Hobart

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It’s my PN anniversary, eight years (if I don’t subtract the 4.5 years it took me to find out it was in fact PN)!

Obviously time brings on reflection which in turn invites the ‘melancholies’ (yes, I did just make up a word). But I have significant reason to bury the ‘melancholies’ this year with the celebration of my solo show at Penny Contemporary in Hobart.

During a recent four months on the East Coast of Tasmania, I was able to focus on my fine art and decided to document my ‘self’ during this very reflective time. Theo and I took time out to ask ourselves, ‘What next?’ having lost my battle for part-time compensation and realising that sustaining, even a part time sitting job, is difficult for me. It was a most valuable time for both of us.

I’m going to leave the review for Intermission to two brilliant women; Australian artist Barbie Kjar (who will open my show and who’s words appear on the invitation), and my niece Kat Moritz, who’s words appear below.

Consider this post your invitation. View all the works here. See you in Hobart!

Solace 457 x 508 mm. Dec 14. Oil on linen.

Written by Kat Moritz

Artist Soula Mantalvanos’ most recent exhibition, “Intermission” signals a bold departure from previous works into more mature, more personal and much more intimate territory. Aptly named, the exhibition is a series of self portraits, which – as a whole – stand as a bold exploration on the artist’s behalf, of her identity as an individual during this intermission of life that she has found herself in.

Painted in the solitude and anonymity of Tasmania’s still very much unspoilt east coast, well over 500 kms from the artist’s inner city home of Collingwood, the works represent an equally pared back and exposed Soula. Leaving behind over seven years of chronic pain and the familiarity of city life, Soula’s portraits are as much of an experiment on her behalf as they are very tangible markers of a new direction in her work.

“I wanted to ask [all those hard] questions and answer them without influence – put them on paper and exhibit the experience. Perhaps I’m testing my confidence? Perhaps I’m wanting to prove to myself that I’m an artist once again?”

Soula’s portraits may have been born out of a pause in her life but, paradoxically, as a body of work, they speak of journey; of transformation; of maturation. Soula makes no effort to conceal brushstrokes or to avert the gazes of her Soulas that stand before us. Instead she commands them to look us straight in the eye, sometimes with poise, at other times with hope, however, always with sincerity. There is no hiding in the wings for this artist or these works; they most definitely warrant to be positioned centre stage; humbly; quietly, however, centre stage nonetheless.

Exhibition Details

Download the invitation
Intermission Invite pdf Intermission
Self portraits by Soula Mantalvanos
Opening Saturday 7 March, 2015 at 4:30pm by Australian Artist Barbie Kjar

Exhibition continues
MARCH 6 – 25, 2015

LOCATION
187 Liverpool Street Hobart Tasmania
EMAIL & PHONE
info@pennycontemporary.com.au 03 6231 5655 pennycontemporary.com.au

Supported by
Aesop, Chronic Pain Australia, Coal Valley Vineyard and Pain Australia

Permission granted and now it’s back to reality!

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Boxing Day Self Portrait For Theo

Or is it possible I never really left my reality? As if anyone can leave chronic pain behind and really have time off!

Sensing the cynical? I best write this post two ways. Technically, the permission ends on Thursday night when we head back to Melbourne so I’m going to post my brain’s two conflicting versions:

1. Crap thinking out-of-the-way first version

Pulling yourself out of life isn’t easy and especially if you’re forced to do it. I was forced and that force keeps on damn well forcing. It brought Theo and I to Tasmania for a four-month ‘sabbatical’ with the topic of research being chronic pain and how to live with it. Truth is, the topic has more likely been what the hell do we do now? It was also meant to somehow help me rid some more pain and pace up my driving, exercise and some daily chores. I was unsuccessful. (more…)

Signing off for 2014 under an Olsen sun at MONA

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Soula At Mona John Olsen Painitng

Or should I say, looking forward to 2015?

Looking forward is more my tune but the changeover of another year, especially with chronic pain, calls me to reflect and to ponder my future.

It’s been three gorgeous months in nurturing Tasmania where I’ve eased my work load, upped my fine art a little, and squished obligations to almost zilch (bliss!). The year will end and sadly I haven’t been able to incorporate driving into my abilities, nor a consistent and regular exercise routine, and Theo is still carrying much of our daily living load… but…

…as I keep stating, finding life balance with chronic pain is really very difficult and I believe ‘we’ are doing very well, yes it takes the two of us, Theo and I. (more…)

Melbourne Leader story, Soula bares soul over pain

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The following story was published in support of the current National campaign: Nerve Pain is Different. Please help us raise awareness for those with debilitating invisible pain.

If you think you have nerve pain, talk to your doctor and visit www.nervepain.com.au. Complete the online questionnaire intended to help you explain your pain and take a printout to discuss with your doctor.

Melbourne Leader Mon 1 Dec

Resident shares story of coping with daily agony following fit ball accident

By Nic Price for the Melbourne Leader

SOULA Mantalvanos’ life was up-ended in 2007 when a fit ball she was sitting on burst and she dropped to the concrete floor.

She didn’t think much of it at the time and tried to continue her routine of yoga four times a week and regular walks, but that soon became impossible.

Dealing with chronic pain that made her feel like her “finger was stuck in a power point”, the Collingwood resident was not diagnosed until four-and-a-half years later with severe pudendal neuralgia nerve pain.

As she embarked on a journey of living with pain, Ms Mantalvanos and her husband turned their lives upside down in an attempt to find a better quality of life.

They closed their graphic design studio down (Ms Mantalvanos now works part- time) and even removed doors in their house so she wouldn’t have to open and close them.

“I’ve learned not to lift more than a few kilos, to sit a lot, get in the car a lot,” Ms Mantalvanos said. (more…)

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What is Pudendal Neuralgia (PN)?

Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggrevated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

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