February 17th, 2019 11:41 am

Out With the Sacral, In With the Spinal (part 3)

By |2023-09-04T14:15:20+10:00February 17th, 2019|Categories: My treatment|Tags: , |

It will take one whole year until stim and I get to know each other. I've done this twice before, I know! There are programs to explore, capacity to pace, and sitting to try without the aids. I want to hop in a train and a tram, and hop off in the city without an agenda and limits. I want to catch up with my dearest friends, some whom I've not seen since I left Melbourne. We've been living off parcels, emails and the phone, and that really hurts.

February 6th, 2019 6:04 pm

Out With the Sacral, In With the Spinal (part 1)

By |2023-02-17T10:32:00+11:00February 6th, 2019|Categories: Blog, My treatment|Tags: , , , |

Then things got even more strange. There was heat, radiating heat where the IPG is, in my face and also other strange feelings that not only added to my pain issues but it made me turn my stim off, more than on! Weird.

December 13th, 2018 12:45 pm

Spinal Cord Stim Trial Day 6

By |2023-02-17T10:32:00+11:00December 13th, 2018|Categories: About, Learn, My treatment, Professional Resources|Tags: , , , , |

I'm not exactly enthused about health admin. There's already enough admin and digital filing to do in life. But I've found that my PT health summary is saving me, not only admin time, but alot of stress having to remember details of my experience. I've included a self portrait for my specialist today!

July 22nd, 2018 2:33 pm

Pain Revolution Names PainTrain a ‘Best Resource’

By |2022-11-26T20:58:49+11:00July 22nd, 2018|Categories: Blog, Help, Manage, My Health Story|Tags: , , , , |

PainTrain has followed Pain Revolution very closely over the years and its this research with Soula's experience that has driven the PainTrain concept. We love having your support all the way Soula! Your [...]

July 5th, 2018 9:54 am

Royal Australian College of GP’s news – I’m in it!

By |2018-07-05T09:54:04+10:00July 5th, 2018|Categories: Advocacy, Blog, Events, News, Online|Tags: , , |

I’m an event in the spotlight. GP’s, I hope to see you there! (Article from RACGP June newsletter) Events in the spotlight GPADD18 Conference: Saturday and Sunday 4–5 August 2018 The RACGP Victoria [...]

May 27th, 2018 3:45 pm

I Turned a Corner

By |2022-11-26T20:58:49+11:00May 27th, 2018|Categories: About, Blog, Learn, My treatment, Personal resources|Tags: , , , , |

Theo and I continue to establish our new life in Queenscliff and are enjoying the many wonderful new aspects of our new lifestyle. We're also learning to manage the sacrifices. It makes me feel I've turned a corner. Home Then Actually, a couple of weeks ago, I literally did turn a corner. After staying in Melbourne for a special family lunch, during the evening we also managed to catch up with old friends on our old pavement. I kind of felt a little emotional pang when I turned into the city end of Gertrude Street and saw the magnolias enjoying the Autumn evening light and the little drizzle that was beginning. Very steadily pacing my drinks, the night saw us hop around our old favorite spots. The life turn happened when I stepped out of the Everleigh and instead of turning right to head 'home', Theo and I turned left to head to a city hotel. We were going to sleep at this hotel, wake up in the morning and return to Queenscliff. Theo had to work... Sunday. I don't often have overwhelming emotional moments. I really deal with life's activities quite well. I mean, who would I think I was expecting a perfect life run, right? 'Suck it up!' But this was one of those overwhelming emotional moments and it was damn hard. I knew what it was. I knew that overdue moment since we left 'home' had finally caught up with me. I fully comprehended that we had said goodbye, and life had moved us on. I lapped up every step away from my previous home as the rain fell on/off and the concrete took in all the glittery, yellow, autumn Melbourne evening lights. I bid abiento to each magnolia as I walked up the street. I also lapped up the arms that were around me and the huge hug that Theo and I stopped to have to mark our moment. Home Now

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