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pain management

Drug dependency lessons from Pharma ads and my two mothers

Author:
Carrying Dog

I can’t stand TV as it hurts to sit or lie back and watch but recently, while tuning in to one of the very few shows I do watch, I caught a message from a Pharmaceutical (Pharma) advertisement about pain medication.

It made me think about my personal situation and about my two ageing mothers who are in daily pain – both drug dependent and waiting for a pill to pop out of the sky and into their weekly pill box to ‘make them better’.

It made me think about the way they’re currently trying to dodge the countless darts from the ageing process that are coming at them thick and fast – one striking occasionally, that they still somehow manage to catch and quickly tuck under a very thick carpet.

Back to the TV.

(more…)

It’s your patient duty

Author:
Pain-Train-mood-map_Karen-Liberi

I’m guessing this isn’t going to be my most popular post.

I know it won’t be because I view my website and the social media stats and both indicate whenever I blog a ‘to do’ or a ‘too hard’ kind of blog you all seem to drop off.

I completely understand. (more…)

My pain management is turning into a thesis!

Author:
Soula M Sacral Implantation 11_1234

It’s taken almost 9 years but I’ve realised that chronic pain requires alot of study – dare I say never-ending study? I believe my research for pain relief for chronic pain may be paving the way for a thesis!

I’ve had a good chat and stare with myself in the mirror, allowed the gut feeling to sink (for just a few seconds), called on gratitude, and here I present to you (with a backside that will soon be comparable in value to Jlo’s) another section of Soula’s Pain Management thesis.

Let’s call it Chapter 4 (approx.)

Patient: Soula (me) Age: 46 (& a few days) Chronic pain since: Mar/07 Injury: Drop to concrete floor from exploding fitball (more…)

How can you know? There might be better treatment out there!

Author:

I was sure. So positively sure.

I was miles better, my life was saved, I was no longer existing, I was living again.

I was sure that I was the best I could possibly be and that I’d received the best possible treatment for my type of pelvic pain.

But now, after a very successful sacral stim trial (of which I’m best writing more about later), I am left to wonder why I made up my mind and what it was that convinced me I was ‘doing great’ and reached the ‘best treatment‘.

I wasn’t, I hadn’t.

I know that living with pain for over eight years reduces confidence and belief. It even (warning, I’m going to use the C word), discourages hope for a cure. But how could I have assumed I found my best self for four years (nearly five actually, gulp!)? (more…)

A new DVD resource, Healing the Pain ‘Down There’: A Guide for Females with Persistent Genital and Sexual Pain

Author:


There have been many times during my years of chronic pain where I wondered, ‘Why didn’t I know that?’. Usually, the information is quite basic and I feel as though I’ve been deprived by never knowing something so crucial and important about my own body.

I was asked to view and give feedback before this thorough resource was released, and a few times, throughout the 284 minutes of run time, I asked myself, ‘Why didn’t I know that?’.

This DVD isn’t just about managing pain, but rather a clear and concise  resource for females… It should be put on some International educational agenda. (more…)

Back on the treatment trail

Author:

VicpainHomeScreen

Maybe I should have titled this post, ‘Back on Pain’s roller coaster‘? But then I’d have to explain my position – which would it be? Up or down? Or is this another case of in the middle – managing?

I have many descriptions for my health status and they are constantly revolving around in my head. That’s because I don’t know where I ever stand with this chronic pain. And there seems to be no one else who knows where I (or you!) stand either. So damn frustrating.

But last year, I got fortunate. Someone planted a seed… (more…)

‘Ouch’ just doesn’t cut it!

Author:

I-feel-so-frustratedAnd neither does repeating, ‘it burns’, ‘it itches’, ‘it’s like fire’, ‘I get spasms’, or the various other words people in pain have to repeat for each consult in the effort to be understood.

Pain Train’s whole purpose is to help patients and their pain management teams communicate beyond these basic words. Pain Train saves the patient the additional pain of having to repeat their history and other related details at each appointment.

Pain Train offers patients a way to also show their friends and family their profiles in the hope they can also better understand their loved one’s experience. (more…)

This Train is Bound for… Wholeville: A Travel Guide for the Perplexed

Author:

Who would have thought that pain and the design process would have found a way to merge in my life. Design is however all about communication, and being a creative communicator I got wondering about how one can document their pain journey.

I also believe from my experience with chronic pain that the area is poorly provided when it comes to expression and language. How is it possible for a patient to describe their situation when their situation has no current definition or current way to be described?

So I thought of a concept! I called it Pain Train and two wonderful things were conceived from it. My soon to be publicised online resource, and a brilliant research paper by John Quintner and Melanie Galbraith.

Pain professionals, John and Melanie, are Pain Train’s first conductors and they have applied their exceptional chronic pain knowledge to the concept with their research paper, This Train is Bound for… Wholeville: A Travel Guide for the Perplexed (download or read below).

John Quintner and Melanie Galbraith are aiming to give people in pain sufficient knowledge so that they can meaningfully engage with their respective health care professionals.This-Train-is-Bound-For-Wholeville

(more…)

Intermission, my solo exhibition in Hobart

Author:

It’s my PN anniversary, eight years (if I don’t subtract the 4.5 years it took me to find out it was in fact PN)!

Obviously time brings on reflection which in turn invites the ‘melancholies’ (yes, I did just make up a word). But I have significant reason to bury the ‘melancholies’ this year with the celebration of my solo show at Penny Contemporary in Hobart.

During a recent four months on the East Coast of Tasmania, I was able to focus on my fine art and decided to document my ‘self’ during this very reflective time. Theo and I took time out to ask ourselves, ‘What next?’ having lost my battle for part-time compensation and realising that sustaining, even a part time sitting job, is difficult for me. It was a most valuable time for both of us.

I’m going to leave the review for Intermission to two brilliant women; Australian artist Barbie Kjar (who will open my show and who’s words appear on the invitation), and my niece Kat Moritz, who’s words appear below.

Consider this post your invitation. View all the works here. See you in Hobart!

Solace 457 x 508 mm. Dec 14. Oil on linen.

Written by Kat Moritz

Artist Soula Mantalvanos’ most recent exhibition, “Intermission” signals a bold departure from previous works into more mature, more personal and much more intimate territory. Aptly named, the exhibition is a series of self portraits, which – as a whole – stand as a bold exploration on the artist’s behalf, of her identity as an individual during this intermission of life that she has found herself in.

Painted in the solitude and anonymity of Tasmania’s still very much unspoilt east coast, well over 500 kms from the artist’s inner city home of Collingwood, the works represent an equally pared back and exposed Soula. Leaving behind over seven years of chronic pain and the familiarity of city life, Soula’s portraits are as much of an experiment on her behalf as they are very tangible markers of a new direction in her work.

“I wanted to ask [all those hard] questions and answer them without influence – put them on paper and exhibit the experience. Perhaps I’m testing my confidence? Perhaps I’m wanting to prove to myself that I’m an artist once again?”

Soula’s portraits may have been born out of a pause in her life but, paradoxically, as a body of work, they speak of journey; of transformation; of maturation. Soula makes no effort to conceal brushstrokes or to avert the gazes of her Soulas that stand before us. Instead she commands them to look us straight in the eye, sometimes with poise, at other times with hope, however, always with sincerity. There is no hiding in the wings for this artist or these works; they most definitely warrant to be positioned centre stage; humbly; quietly, however, centre stage nonetheless.

Exhibition Details

Download the invitation
Intermission Invite pdf Intermission
Self portraits by Soula Mantalvanos
Opening Saturday 7 March, 2015 at 4:30pm by Australian Artist Barbie Kjar

Exhibition continues
MARCH 6 – 25, 2015

LOCATION
187 Liverpool Street Hobart Tasmania
EMAIL & PHONE
info@pennycontemporary.com.au 03 6231 5655 pennycontemporary.com.au

Supported by
Aesop, Chronic Pain Australia, Coal Valley Vineyard and Pain Australia

Pain Train – Patient health profiling free for 3 months

Author:
Free-trial-900px

All aboard with a free 3 month trial on Pain Train

It’s true that each of our pain journeys are unique. I must have been asked the following questions at least a gazillion times during my own pain journey:

How did the chronic pain begin, what investigations have you had, did you bring any reports with you, what kind of pain treatments have you tried, how long have you had chronic pain, which Health Care Professionals (HCPs) have you seen, have you taken any pain medication…?

And, I will never forget struggling to answer. That is if I was able to answer due to my fatigue, extreme pain levels, or dulling effects due to pain medication.

So how can a HCP begin to gather the best possible understand of each of their patients unique pain journeys? And how do patients navigate their search for diagnosis and treatment as best they can?

Stand clear… Pain Train is approaching

(more…)

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What is Pudendal Neuralgia (PN)?

Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggrevated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

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Pain Train was created for patients by me, a pain patient. Try it FREE for 3 months

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