soula in Blog
, Print on October 7, 2014
It took nearly five years of chasing answers, of tests and interventions, frustration, grief, and constant, unbearable pain to reach a diagnosis. The fall caused nerve damage in the pelvic area, very real but invisible on MRIs, examinations, X-rays and CT scans.
“It is still a primitive time in pain. Being told for four and a half years ‘this is chronic pain … go home and live with it, there’s nothing that can be done’ is brutal not to mention primitive.”
Last week, I attended my last acupuncture appointment and for the first time in over seven years, am therapist free. Hang on, I have to just repeat that:
I am therapist free
Did I ever think this day would come? Of course I did and I believe that’s why I am here.
I have had my moments, but what I didn’t realise through all that heat and whilst pacing like a snail, was that each flare up and pain episode was actually not an indication that pain was here to stay, but rather that it was actually beginning to leave. Although just a difference of minutes initially, eventually I felt the flare ups spreading further apart. And with recognising that change and NOT increasing my capacity past a snail’s shell weight, I began to make progress.
soula in Professional
, Who can help on August 14, 2014
(Excerpt from findingyoga.com.au
Rachael West is a yoga teacher, facilitator and educator.
She is an accredited yoga teacher with Yoga Australia with roots in the Krishnamacharya lineage and in 2011 completed a University Diploma in Yogic Education (University of Lille, France) with first class honours.
As the only Australian to study this specialist practice area, […]
soula in Learn
, Professional Resources on July 23, 2014
(Read the full post on the Arthritis & Osteoporosis WA website: www.arthritiswa.org.au or click on the flyer to download a pdf)
14th Nov 2014 to 15th Nov 2014
08.30 – 4.30
Registration Closing Date
7th Nov 2014
Wyliie Arthritis Centre
17 Lemnos Street Shenton Park WA
About the venue
Lunch, morning and afternoon tea provided.
John Quintner & Melanie Galbraith
John: 0419956418 email@example.com
Melanie: 0405963658 MelanieG@arthritiswa.org.au
What sets “Making Sense of Pain” apart from other Pain Management workshops and seminars? We show you how to put this information into practice and improve your interactions with patients to ensure more positive outcomes.
This workshop is dedicated to the memory of Robert Elvey [1942-2013], a WA pioneering physiotherapist (pictured on the flyer).
soula in About
, Online on May 18, 2014
Excerpt from Sullivan Physical Therapy‘s Sara Sauder. Read the full interview on her blogspot.
Soula Mantalvanos is an Australian artist living with pudendal neuralgia. She runs a website and a blog that chronicles her life since developing pelvic pain. These mediums are helping people around the world learn more about pudendal neuralgia (PN) and how […]
soula in About
, My treatment
, Online on April 15, 2014
The National Pain Report, my story.
April 14th, 2014 by Soula Mantalvanos
I begged my neurosurgeon to do anything, even to chop my coccyx off. But after getting opinions from other surgeons, he suggested not to go the invasive path as we had the option for an implant called a peripheral stimulator, a treatment that was reversible. It made more sense.
soula in About
, My pain
, My treatment
, Relief on March 30, 2014
I begged Professor Teddy to do anything, even to chop my coccyx off but he (and his backed up opinions) suggested not to go the invasive path just yet (removal of the coccyx had also not been very successful in treating chronic pain), we had an option for an implant, a treatment that was reversible, it made more sense. To ‘qualify’ for a stim you have to go through a trial first. The trial period was two weeks and in that time I had half of two leads placed inside my body (yes this is a full anesthetic/operation), with the remaining half of the leads hanging outside my body connecting to a temporary unit. It’s a risky period, one very highly susceptible to infection but it allowed me to test the device and its impact before we implanted the $60k (or so) unit. Am I grateful I had private insurance? You bet! My WorkCover insurer certainly wasn’t going to pay, eventually dismissing the surgeons reports as not having providing enough information.
soula in Living
, My pain on March 6, 2014
The post many of you have been waiting for… Theo’s thoughts, sacrifices and life experience of his daily ‘caring’. I should add that Theo and I have been together almost 20 years, seven of those consumed with Pudendal Neuralgia (PN).
What does PN mean to you?
To me PN is a yet to be accepted […]
soula in About
, My pain on March 1, 2014
It’s my anniversary today. Seven years from the day my (and Theo’s) life changed. I’m heavily considering changing my beliefs… did I break a mirror?
I’m not superstitious, but if it means owning up to breaking a mirror I’d be more than happy to change my views. So long as at 11am today, this Pudendal […]
I would have had to be dead not to front up to an opportunity where I could present my pain journey to 180 chronic pain interested practitioners.
Was I terrified? Absolutely! But as if chronic pain hasn’t trained me for that, pushing me past all my boundaries and limits, and facing constant fears… this was going to be a piece of cake in comparison!
The Alliance for Improving the Management of Pain 2014 (AIM Pain 2014) was held in Sydney and PainAustralia were searching for a patient to tell their story. My first thoughts were; I had to be able to tell my pelvic pain story through art, Ms Soula had to be on the stage with me, and I worried that this was impossible to physically manage without Theo’s help. As it turned out all that was ok, in fact the organisers were most enthusiastic about the creative side, and the support for both Theo and I was 100%.
I was asked to present my story as honest as possible and in my own words and pictures.