July 5th, 2018 9:54 am

Royal Australian College of GP’s news – I’m in it!

By |2018-07-05T09:54:04+10:00July 5th, 2018|Categories: Advocacy, Blog, Events, News, Online|Tags: , , |

I’m an event in the spotlight. GP’s, I hope to see you there! (Article from RACGP June newsletter) Events in the spotlight GPADD18 Conference: Saturday and Sunday 4–5 August 2018 The RACGP Victoria [...]

April 23rd, 2017 12:20 pm

Dr Susie Gronski: How One Artist Used Her Hurting Strings To Stitch Back Her Life

By |2017-04-23T12:20:04+10:00April 23rd, 2017|Categories: Advocacy, Blog, News, Online|Tags: , , |

I can't recommend Dr Susie highly enough. I wish I had online physical therapy advice when I felt lost, unable to commute and in need of someone who could understand my pain [...]

March 12th, 2017 3:43 pm

ADF campaign: Losing Yourself in Pain Medication

By |2017-12-11T09:16:54+11:00March 12th, 2017|Categories: About, Advocacy, Blog, My treatment, Online|Tags: , , |

The Alcohol & Drug Foundation (ADF) has been working to enhance awareness about the way Australians consume pain killers. My understanding of the campaign is that the ADF in no way suggests pain killers [...]

September 29th, 2016 1:28 pm

My interview with the ABC 7:30 report

By |2017-12-11T13:42:08+11:00September 29th, 2016|Categories: Advocacy, Help, Professional, Television|Tags: , , |

(View the story online http://www.abc.net.au/7.30/content/2016/s4547621.htm) Tune in tonight for my interview in regard to navigating practitioners with a chronic illness. On the ABC's 7:30 report (yes, on ABC at 7:30) Patient's have [...]

March 25th, 2015 12:11 pm

Pelvic Pain Foundation of Australia’s Melbourne launch

By |2017-12-11T15:12:07+11:00March 25th, 2015|Categories: Advocacy, Blog, Help, Professional|Tags: , |

I was thrilled to be invited to The Pelvic Pain Foundation of Australia (PPFA)'s Melbourne launch last night. I originally met Dr Susan Evans when I was invited to present my patient story at AIM Pain 2014. I had cyber met Dr Evans prior, asking if I could include her details on this website, in fact I've 'e-met' many pain professionals this way. I never dreamt that one day they may all be in the one room together, all of us advocating for pelvic pain and helping start up a National organisation that addresses pelvic pain for women AND MEN. Needless to say, last night I went on a magic carpet ride!

February 18th, 2015 12:41 pm

SBS Insight: Ouch!

By |2017-12-11T13:11:42+11:00February 18th, 2015|Categories: Learn, Professional Resources|Tags: , , |

As usual, I was waiting for a lead. Waiting to hear that someone with chronic pain had found a way out of it and was cured. Mrs Gleeson, I could have bet you were going to say you were fine, after all, you looked it! And so did Lesley Brydon, Pain Australia's CEO... how could she be in any pain?

October 30th, 2014 9:59 am

My interview with the Australian Pain Society

By |2017-12-11T14:10:27+11:00October 30th, 2014|Categories: Advocacy, Online|Tags: , , , |

APS: How important are support groups for both you and your close family/community? Soula: I can’t say I feel there is much support for my husband and family/community. It’s difficult with invisible pain, it’s a similar scenario with depression, we still don’t get it. Society seems to have been given an immense right to provide their opinion (e.g. with social media platforms) and this has opened up some kind of authority to encourage opinions and much judgment. Not many tread carefully or really think from someone else’s perspective. Although we have more information accessible to us, we seem to be learning less.

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