Getting a grip on pain and the brain – Professor Lorimer Moseley – Successful Ageing Seminar 2013
Always great to hear the latest definitions and discoveries regarding pain from THE pain Professor, Lorimer Moseley.
It still stumps me however, to hear how ‘intelligent’ the brain is but yet how stupid its ‘brilliance’ is of learning pain tunes. In fact I’m not sure I’m stumped, I’d rather call it disbelief that all this horrific pain I’ve endured the past 6.5 years can be a tune… a learned behaviour. I certainly don’t dismiss the research and of course we’ll all be examples of different definitions of pain but in my tail’s tip, I believe my undiagnosed and unrecognised injury to my pudendal nerve injury, and the lack of treatment, has created a great wound that if not scarred will need its time to heal.
Yes, I pace up my activity (or is it better put that I juggle it well), but now that I am having appropriate treatment, I’m going to hold the thought that I may be nursing my wound towards healing. I am happy however, to let anyone who swears by ‘pain tunes’ to believe that I’m also slowly changing my brain’s pain signal and that the process is more about plasticity.
Whatever floats your boat I say, so long as it leads to cure.
Here is my attempt to gather all references I’ve come across or that I refer to on my website for Chronic Pelvic Pain. Clearly nowhere near all the references that exist but at least one ‘library’ location with a bundle of great material (and one organised website!). If you’ve come across a resource that you think should be included, please contact me and if you are an author and have an update or other information to provide, I’d love to hear from you.
I know how frustrating it is to have to sift through pages and pages of the internet, I thought this could be of help to pain sufferers who simply don’t have the up time.
And a huge thanks to everyone who replied and supplied me their updated material. Obviously I plan for this page to grow and somehow I will keep it in some kind of legible order. Currently in alpha order by author and title of their publications, perhaps as it grows, we can list by subject. (more…)
I can’t adequately define the moment I was diagnosed, it’s just too difficult to explain the 4.5 year scattered hunt that ended with a few seconds and just two words!
Empathy and understanding however, are two words that do explain what I felt when seeking approval to use the research and names of the Pudendal Neuralgia Masters (as I like to call these specialists). Honestly, if words, thoughts and care from complete strangers could heal me I would have been healed twice over by now. These Masters really touched my heart (unfortunately not my stubborn Pudendal Nerve, but all in good time!).
I wanted to share these comments, especially for anyone suffering with Pudendal Neuralgia as I feel its important that we all know who these incredible human beings are and that they are endlessly working towards our cure and international awareness every day. The other important thing is to know where they are.(more…)
I have a painful shoulder. It has been hurting since mid-December. I can recall no incident – just woke up one morning with severe pain on pretty much any movement. Now, I am not looking for diagnoses, nor in fact sympathy. What I would like to do instead is to run you through some interesting reflections I have had. (more…)
Research into the role of the brain in chronic pain.
Who are Body in Mind
The relationship between the body, the brain and the mind is complex and magnificent, which is why lots of people are investigating it. This website focuses on attempts to better understand the way the body, brain and mind interact. The lead scientist, Dr Lorimer Moseley, is particularly interested in the role of the brain and mind in chronic and complex pain disorders. Through collaborations with clinicians, scientists, patients and thoughtful friends, the team is exploring how the brain and its representation of the body change when pain persists, how the mind influences physiological regulation of the body, how the changes in the brain and mind can be normalised via treatment, and how we can teach people about it all in a way that is both interesting and accurate. This website includes links to published articles, current projects, teaching resources for clinicians and lecturers, Lorimer’s books, seminars and conferences and other info that the team thinks is intriguing, important or irresistible.
Explain Pain has been a huge stepping stone for patients and clinicians – not only in understanding pain but being able to communicate the concepts to others. Over 5 years on, and the book is still unprecedented in its layout, descriptive illustrations and incredible bank of information. Backed entirely by scientific evidence, Explain Pain is a recommended text at many universities but also read and enjoyed by everyday people in pain.
A few months into my implant and I felt like I was human again… my senses were back and it was incredible!! That thick pain fog was lifted and I could taste, smell, see, concentrate, focus, remember, listen, think, plan, dream, enjoy, laugh, read, oh what bliss!!!! And I also realised that the anaesthetic gives great long-lasting relief to my nervous system.
So, clearly it was time for research. Here I was for almost four years thinking my issue must have been motor/mechanical but still considering Regional Pain Syndrome, Pain loops etc along the way. I picked up a book my massage therapist, Pam Frost recommended: Norman Doidge, MD | The Brain That Changes Itself. The book referenced Dr Lorimer Moseley and mentioned something along the lines of him extending the ‘mirror box’ experiment and stated he was Australian!
So I googled… I found an ABC interview with Margaret Throsby that I had actually heard before but not remembered, and many many email addresses for a point of contact. So I wrote… I thought either I can help myself, I can help Lorimer (yes, we’re on first name basis now!) or both! Lorimer’s reply was simple: ‘…tell me roughly where you are and i can link you up with someone good’. And boy didhe!!
Most simply put PN is Carpal Tunnel in the pelvis/buttocks.
Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggrevated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.