HOPE is probably our best online resource for PN, the forum in particular is full of great advice and information from practitioners and patients, around the world including of course, Australia/NZ.
HOPE is a charitable organization that offers support and information to patients who have pudendal neuropathy (PN), pudendal neuralgia (PN), or pudendal nerve entrapment [...]
(Excerpt from Dr. Aaron Filler’s website www.nervemed.com/about/dr-aaron-g-filler-md-phd)
Dr. Aaron G. Filler, MD PhD FRCS
Dr. Aaron Filler is the world’s leading expert in treatment of nerve pain. He has revolutionized nerve-pain treatment by inventing several new technologies. One such technology, MR Neurography, enables doctors to use an MRI scanner to examine nerves, previously a difficult-to-impossible [...]
soula in About
, Pudendal Neuralgia on February 6, 2013
Finally some accurate coverage and attention. WorkSafe, I hope you were listening, ignore Chronic Pelvic Pain no more!
Honestly, I cried listening to this on Wednesday. Nothing like empathy and understanding after years of pain and hunting for diagnosis and proper treatment. So for anyone who’s (understandably) thought ‘is so-and-so really in pain? I just [...]
From London UK & Corfu, Greece
“I’m now retired from the University of Westminster & semi-retired from private practice. I live in Corfu, Greece most of the year and make periodic visits to the UK to see a few patients, do a little teaching, & catch up on what’s happening in London’s art and theater [...]
soula in About
, Pudendal Neuralgia
, Who can help on September 20, 2012
I’ve been contacted by a few males who feel their symptoms are similar to the ones I share on my website. There is help, for males with pudendal neuralgia in Australia:
soula in About
, Pudendal Neuralgia on September 4, 2012
(Excerpt from the Daily Mail’s newspaper)
Feminist Naomi Wolf finds enjoyment in sex again after her nerve ‘wiring’ is repaired by surgeon
• Author felt something different was happening after sex
• ‘I felt I was losing somehow, what made me a woman’
• Doctor found she had been born with mild spina bifida
soula in Learn
, Professional Resources on August 24, 2012
The study and treatment of persistent pelvic pain is a growing area needing robust discussion and critical thinking. The pelvis isn’t weird and mysterious. It is merely complex, with multiple social implications and psychological/biological complications. A good portion of the fine research on CRPS and CLBP may be just the thing we need to help these patients.
soula in About
, Personal resources on July 4, 2012
As documented many times with this condition, treatment isn’t just about relief, it also provides more detail about the issue and this becomes a guide for the next step. It’s like taking mini steps of progress and it really feels fabulous, I feel as though I gain some control, I foresee future options and ultimately, I regain some hope. Without this I’m travelling blindly….
I began to really struggle 12 weeks after the first block and even during that time I had a few flare ups. I wondered if my implant perhaps had interfered with my nerve block as it’s known to cause pain if you keep it on whilst the pain is at a low-level (yes, try to figure that one out!!) By the time I realised my nerve block was well and truly wearing off I was at the 14 week mark, and having been very excited with what relief I had, Theo and I booked a holiday to Italy. Thankfully the brilliant Dr Courtney was able to fit me in for another nerve block at the 19 week mark which was exactly two weeks before travel time. Why am I mentioning the holiday? Because I believe a nerve block needs support, it needed me to get out of the pain routine and team it up with as much distraction as possible…
I felt my brain would freshen up, have a new shot at life and not have to face my day bed, aids, daily pain routine etc etc. I set off to live a dream in hope distraction would bring a positive change and another step forward…
File downloads and links Physiotherapy management of pelvic pain and sexual dysfunction: Clinical Application. Pdf 3.2mb Anal Pain Caused by Entrapment of Nervus Pudendu, Ahmed Shafik. Pdf 150kb Transperineal Pudendal Nerve Decompression, Jacques Beco M.D. Pdf 180kb How can we win the war against pudendal neuropathy? Jacques Beco M.D. Pdf 1mb Complex Pelvic Pain Syndromes, [...]
How could it have been so hard to figure out when even Wikipedia can explain it!!!?
…Don’t google… pf!