…I’ll clarify now, this post is a very positive one. It’s about standing up, facing the world which requires courage, strength, being understood, supported, alot of struggle, and a damn load of management skills.
not only did Lucy Feagins share our creativity on her brilliant blog, but her address and understanding of our space and lives couldn’t have been more spot on or more supportive of PN. It puzzled me that Lucy could understand it when others struggle so much.
I want judgement to stop. People in pain shouldn’t have to say more than ‘I suffer chronic pain’. It’s harmful and prevents people in pain from going out when they’re feeling ok, or rather when they can withstand their pain. If their houses are really tidy, that means they have help. If you see them socialising in one place, doesn’t mean they can make it to the next. We are able to smile, we can move, we can walk, we can stand, just not alot. We don’t hunch, in fact our practitioners teach us to have great posture, we might sit funny, walk slow, not carry much, and stare as you may you won’t see our pain. If we appear somewhere and look great, we planned for that and it took alot of sacrifice and help. If you have doubts, keep them to yourself please because there’s no doubt in our mind we’re in pain.
soula in Media
, Work & The System on May 31, 2013
You can all imagine why The Scheme Project caught my attention and you can all understand why my pledge was not only made in seconds it was supported (and increased) by my husband Theo who equally saw the benefits in Kris’s project. As frustrating as it is being left without any income and medical support after my workplace accident and having my fair share of rants to expose, I actually appreciated Kris’s professional approach to his project and his intent to make the documentary up front but not personal. He’s not looking for tantrums, witch hunts, singling out of fraudsters and unethical behaviour but rather aiming at exposing the realities in hope of making a change. At the end of our conversation we both agreed that life’s great knowledge of ‘health first’ doesn’t seem to be part of WorkCover’s culture. The support just isn’t there, not in treatment, not in standards, not financially and certainly not in return to work.
What does Kris need?
Your signatures and your pledge (pledges are not collected unless Kris reaches his target). ‘You’ may be an injured worker, family member of an injured worker or employer, a treating practitioner, medical examiner, conciliator, lawyer, investigator, WorkSafe agent staff member, Minister, anyone associated with the WorkCover system in fact any worker or employer, we all deserve better quality protection.
soula in About
, My pain
, Work & The System on May 9, 2013
We don’t usually love media, but a little attention after some lengthy hibernation from work was bound to be very valuable for our (Theo’s and my) 12 or so year old business, Origin of Image. The lovely Sunday Style (Herald Sun) offered an interview in their ‘My_Space’ feature… hmmm, quite funny for us as there’s nothing ‘my’ about ‘our’ life. We share work, living, we even share Pudendal Neuralgia (PN).
However this media attention and the snap of me in Sunday’s weekend paper had me staring at my portrait (thank you Marija Ivkovic) with curiousity at that captured second of my able life. I looked incredibly independent, active, like I was working full-time and like the issue I confessed to was clearly easy to live with.
We are all judged on our facade… and although it was stated in the article that I have PN, I often wonder: can it (or any other invisible issue) ever be understood by my friends, family or community at a glance? The answer is obviously ‘no’. I myself battle to understand this conflicting issue with its high sensitivity, on/off maddening, screaming and confusing signals and failing functions, and that’s no surprise because even I can’t see it! Theo puts it well, “I can’t understand Pudendal Neuralgia but I believe Soula”.
As you may have read I’m a little suspicious as an injured worker, about my WorkCover assessments over the last six years.
No one has ever documented or treated my condition appropriately, no one seems to know Pudendal Neuralgia, it seems like it’s not part of the guidelines that Independent Medical Examiners are required to assess [...]
soula in Work & The System on December 28, 2012
Increasing employment opportunities for people with disability.
Minister Shorten seeks proposals on ways to boost employment participation for people with disability, discussion paper seeking public views on how best to achieve reform.
The discussion paper, Improving Employment Participation of People with Disability, seeks public views on how to best achieve reform, including:
• how to promote and improve equality for people with disability in employment and in the workplace
• how to support employers to identify and remove barriers to full and equal participation of people with disability
• how to promote the removal of all forms of discrimination on the basis of a persons’ disability
• how to improve workplace consultation between employers and employees on issues concerning people with disability in the workplace
• how to improve the productivity and competitiveness of Australian business through the advancement of people with disability in the workplace.
The Government would like to hear from all interested parties, including:
• people with disability, their families, carers and community representatives
• employers and employer representatives
• current Employment Service Providers
• state and local governments
• unions and other employee representative groups
soula in Learn
, Personal resources
, Work & The System on November 9, 2012
“I’ve got to get to work, it might have been work… I have to get to Swanson Street… I sell The Big Issue”. Yes, you read right… and to top it off I was kindly informed, in just a few stops, that I could buy a calendar too! I couldn’t help myself, I asked, “Are you trying to sell me something on the tram?” We all laughed.
soula in About
, My pain
, Work & The System on October 23, 2012
…please gear up with me, imagine the drum rolls and the biggest mountain you can imagine with me standing on the tippy top yelling because this IS real, IT’S true, IT’S official:
I’M BACK AT WORK!!!!!!!”
No, I’ve not overdosed on my medication and the stress of a chronic pain issue has not damaged me enough to be hallucinating.., I. AM (wiggling heaps but all the same). SITTING. IN. A (very nice ergonomic). CHAIR. TYPING. THIS. POST!!!!
soula in system
, Work & The System on August 28, 2012
I’m forever searching for a decent explanation as to why the AMA Guidelines used to assess injured workers in the WorkCover system are so poor and out of date, especially when it comes to assessing chronic pain (and in my case of pudendal neuralgia measures a total score of 0!!).
Along my social media travels, searching for answers and researching for treatment or updated information regarding my condition, I have met John and had the pleasure of some great discussions. Dr John Quintner is a consultant physician in rheumatology and pain medicine and has kindly offered to share his published opinion on the matter. Thanks John!
Personal injury compensation: lessons from Talmudic law, by John Quintner
…This article examines some of the principles upon which our personal injury compensation systems are based, in order to better understand why the process of tort litigation has itself become such a major factor in healthcare in modern societies…