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My interview with the ABC 7:30 report

Author:
7-30-report-interview-sm

(View the story online http://www.abc.net.au/7.30/content/2016/s4547621.htm)


Tune in tonight for my interview in regard to navigating practitioners with a chronic illness. On the ABC’s 7:30 report (yes, on ABC at 7:30)

Patient’s have a voice and patient’s can help other patients by reviewing the professionals (and not!) whom they’ve seen. Best of all, patients can do this with their own patient, laymen language.

I wish I had read ‘This practitioner helped me with my sitting pain’ somewhere on the net. Perhaps it would not have taken me 4.5 years to be diagnosed.

Love the idea of whitecoat.com.au. Love the idea of patients sharing their experiences and encouraging great care.

Most of all, it puts the patient in the driver’s seat, eliminates the pressure for GP’s to know everything which is impossible. It’s a patient’s job to look after their health issue and with resources like whitecoat.com.au that can be done.

And no, I never get paid for interviews or to plug someone’s service – this is my opinion.

Stepping into an ANZCA ad to help raise awareness for chronic pain

Author:
Soula and Marika Silwedel at ANZCA ad filming

(Update: July 18, 2014)
Yep, I’m one in five…

Watch the full ad at: www.anzca.edu.au/fellows/foundationSoula In Anzca Ad

(June 14, 2014)

Chronic pain insists on presenting me with the unexpected.

Today, I found myself on the Kerferd Road Pier in Port Melbourne, participating in the making of an advertisement that the Australian and New Zealand College of Anaesthetists (ANZCA) are making to raise awareness and funds for chronic pain. How could I say, ‘no’? Actually, I’m ashamed to say, I nearly did say ‘no’, but I quickly motivated myself by thinking of the star of this commercial who is a 5-year-old boy with arthritis.

The amazing team for Sceneon handled the filming, and from what I gathered today, the concept of chronic pain is going to be well documented and represented. Don’t want to give away too much, just a few behind the scenes shots. You’ll only have to wait a month to see the outcome. Subscribe to the site if you’re aren’t already to receive the newsletter or post update.

To add to the ‘unexpected’ adventures of chronic pain, I finally met Marika Silwedel whom also featured on A Current Affair’s (ACA’s) Nerve Pain story the same night I was. Who would have thought two people would eventually met via a pain story and ACA!? (more…)

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What is Pudendal Neuralgia (PN)?

Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggrevated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

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