soula in Learn
, Personal resources on July 30, 2013
Excerpt from American News Report: July 8th, 2013 by Carol Levy, Columnist
I was sitting at a table with some people I knew, slightly.
I did not know how much of my situation they knew, but the issue came up about my not being able to work. I told them about the pain that comes [...]
Before I get into PN versus PNE, I want to first give you a brief explanation of the physiology of the pudendal nerve and the diagnosis of PN.
The pudendal nerve is a large nerve that arises from the S2, S3, and S4 nerve roots in the sacrum, and divides into three branches—the inferior rectal nerve, the perineal branch, and the dorsal clitoral/penile branch. The nerve travels a tortuous course through the pelvis to innervate:
• the majority of the pelvic floor muscles,
• the perineum,
• the perianal area,
• the distal third of the urethra
• part of the anal canal
• the skin of the vulva, the clitoris, portions of the labia in women,
• and the penis and scrotum in men.
The pudendal nerve travels a torturous course through the pelvis.
Patients with PN can have tingling, stabbing, and/or shooting pain anywhere in the territory of the nerve. Symptoms include vulvar or penile pain, perineal pain, anal pain, clitoral pain, and pain at the ischial tuberosities as well as pain with bowel movements, urination, and orgasm.
The kindness of the pain world just keeps on delivering… The time and effort specialists take to email and share their resources and offer advice for pelvic pain / Pundendal Neuralgia (PN) is astounding and something that moves me so much. Having the website setup to be able to pass the information on is the ultimate. The chronic pain world is hellish, but like many of life’s screaming contrasts, for all the hellish qualities of pain comes a community that offers warmth, understanding, support, sacrifice, and the utmost kindness.
I can go on but my point is, I’ve found another brilliant pain centre and I want to share it. Quickly. Are you in the Netherlands? I believe you’re a phone call away from changing your pain situation (and participating in a ping pong game after your appointment!).
Although I’ve tried acupuncture many times before, I’ve never felt as much of a response as I am feeling now after my four sessions with Raffaele Vavala. It’s possible my body wasn’t ready for it, being in ‘the thick of it’ until about a year ago my onion was just too big! But I also [...]
Another year gone by since the pop! Now I know what practitioners mean about peeling onion layers. My onion layers have gone something like this:
Removal of pelvic thickened ligament Peripheral stimulation device implant Diagnosis Nerve blocks Medication … Could it be my Traditional Chinese Medicine?
HOPE is probably our best online resource for PN, the forum in particular is full of great advice and information from practitioners and patients, around the world including of course, Australia/NZ.
HOPE is a charitable organization that offers support and information to patients who have pudendal neuropathy (PN), pudendal neuralgia (PN), or pudendal nerve entrapment [...]
soula in Learn
, Professional Resources on February 2, 2013
A dear friend (cyber) introduced me to Dr Nick Christelis. One of these days we’re going to meet, but in the meantime I’ll go ahead and include a post about this wonderful man and his associates.
My aim for this website is obviously to create awareness for Pudendal Neuralgia and any issue that relates to it. So far it’s been difficult and a very slow progress as far as getting practitioners/specialists to connect, listen and introduce themselves and share their learnings. Of course that does have a lot to do with these wonderful professionals being caught up in their work, but also their limited time to get stuck into social media. And this is what I’m loving about Dr Nick Christelis’s group, they’re using social media to meet and mingle, learn and spread word.
It gives me so much hope, not only for Pudendal Neuralgia but for other Chronic Pain disorders. If practitioners are able to connect to each other, listen to their patients and then share what they’ve learned, awareness and appropriate treatments will approach us much faster. Bring it all on!
Definitions of Pain is a must read for anyone who’s ever felt their descriptions of pain are not understood.
soula in Learn
, Professional Resources on February 1, 2013
PainAdelaide is an interdisciplinary cross-institution collaborative initiative to develop a synergistic and highly-visible pain research community in Adelaide. What does this mean? Well, Adelaide’s three Universities – UniSA, Adelaide & Flinders – all have world class pain researchers doing world class work.
The objectives of PainAdelaide are to improve the quality and impact of pain research and clinical practice in South Australia, and by so-doing, across Australia and abroad. We will do this by:
* bringing high quality researchers together, to act as ‘cortical prostheses’ for each other, to exploit the unique contributions and intellectual diversity of Adelaide’s Universities, and to facilitate collaboration on interdisciplinary projects;
* developing a visible pain-focussed presence in Adelaide;
* directly engaging with, and developing ongoing constructive relationships with, Adelaide’s high quality pain clinicians;
* fostering a collaborative spirit of intellectual curiosity between researchers, clinicians, stake holders and consumers;
* confirming and extending Adelaide’s long-standing reputation as a Centre of Excellence in pain research and treatment.
PainAdelaide 2013 is our first meeting.
(Image left: from Leon’s FB page showing his support for my website)
From Leon Chaitow’s website
Welcome to my revamped website (fully redesigned and built by my daughter Sasha).
Whether this is your first, or a return, visit – please take your time to explore the various sections and to click on individual book [...]
soula in Learn
, Personal resources on January 17, 2013
Another wonderful connection I’ve made on my daily mission for understanding Pelvic Pain, is with the lovely Kathleen Mazzella, founder of GAIN (in Perth).
Gynaecology is currently not too connected to Pudendal Neuralgia (and vice versa), but after my own experience, I believe in time they will be very closely connected. After all, there are many cases of nerve issues arising after gyneocolgical procedures, but I can also report that my first issue was in fact a nasty over grown pelvic ligament that my Gynaecolgoist removed (and with it went the extremely high sensory pain possibly releasing the pressure on the Pudendal Nerve).
Obviously progress and learning about the brain, pain signals and general medical research, will change the way we tackle pelvic pain today, thankfully!
(excerpt from the GAIN website)
Kathleen (Kath) Mazzella, Founder of GAIN (Gynaecological Awareness Information Network Inc)
Kath has endured the trauma of being diagnosed with, and treated extensively, for a gynaecologicakathl cancer – vulval cancer.
From a position of experience, and compassion, Kath created GAIN in response to the needs of these women. Today, a vibrant cancer survivor, she continues to lobby for more awareness, funding and research for gynaecological cancers, pre-cancers and other gynaecological disorders.