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Arthritis & Osteoporosis WA, Making Sense of Pain 14 – 15 Nov 2014

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Arthritis Osteoporosis WA logo(Report prepared by Melanie Galbraith and John Quintner, Course Co-Convenors. Read more on the Arthritis & Osteoporosis WA website: www.arthritiswa.org.au )

The third inter-disciplinary workshop for health professionals

The late Robert Elvey, world-renowned Perth Manual Therapist, to whom these workshops are respectfully dedicated, would have been delighted at the enthusiasm and expertise with which our course content was delivered. Most of the attendees were physiotherapists, but there were also a few occupational therapists, podiatrists, and nurses.

Presenters & Registrants As well being truly inter-disciplinary, the other outstanding feature was the participation of our seven Pain Champions, who engaged with the attending health professionals in an honest, open and non-confronting manner.

By the end of the second day, everyone, clinicians and patients, had been given the opportunity to experience what it is like to be together in the “third space” – a clinical space for healing where “you” and “me” can become “we”.

Day 1 was about how to create the therapeutic milieu, whereas on Day 2 participants were encouraged to acquire the necessary practical skills and explore how best to apply them to real life practice.

The presenting team, led by physiotherapist Melanie Galbraith and retired rheumatologist John Quintner, included Jane Muirhead, occupational therapist, Vance Locke, psychologist, and Mary Roberts, clinical psychologist (registrar).

Together they shared a wealth of knowledge and experience with participants, and gave them valuable insights into contemporary best-practice pain management and the various language traps to be recognized and avoided in order that they do not inadvertently stigmatise their patients.

Melanie contributed “hot off the press” news from the recent World Pain Conference in Buenos Aires. The most exciting advance was the isolation of the gene FKBP5, whose genetic variants can influence not only the severity of persistent post-traumatic musculoskeletal pain experienced during the weeks following a motor vehicle collision and after early life trauma. The field of epigenetics holds great promise in helping us to better understand many painful conditions and how to manage them.

Our Pain ChampionsThe strength and weaknesses of the biomedical and biopsychosocial “models” of illness were explained and participants were then alerted to an emerging paradigm for Pain Medicine, one that transcends the body/mind dualistic thinking so stigmatizing to many people in chronic pain.

Although analgesic drugs were mentioned during the workshop, their relative inefficacy for most patients with chronic pain was emphasised. Instead, more emphasis was placed on understanding the complex clinical manifestations of stress response activation and the clinical consequences that can be observed when these responses are unable to switch themselves off when the danger or threat is no longer present.

The presenters explained the important role of non-drug contributions to pain management that can be offered by the different health professionals. The common theme running through their presentations was the importance of clinicians listening to, understanding, and continually validating the experiences of their patients. The fact that empathy has two sides (positive and negative) was also acknowledged.

Course registrants were provided with a number of key papers to read prior to attending and were also invited to complete an online questionnaire specifically designed to make them aware of their own beliefs and attitudes towards people in pain. They were asked to again complete the questionnaire two weeks after the course had concluded. The results form part of an important research project currently being undertaken by Samantha Bunzli, School of Physiotherapy, Curtin University.

Judging by the completed Course Evaluation forms it is clear that we are providing a unique learning experience for health professionals and, indirectly, for people in pain. To the best of our knowledge, our course is a unique one

Comments from participants:

“Thank you for holding such a relevant and insightful course.”

“Good experiences. Particularly the opportunity to interact/hear from those with chronic pain. The Pain Champions were very open and should be congratulated. The ideal outcome would be to have a list of practitioners/clinics of “like mind” to refer to if necessary.”

“I have enjoyed this course so much with the added benefit of having pain champions to tie all the information together, Thank you!”

“Good energy, enthusiasm, and, importantly, authenticity. It’s very clear you all have ‘purpose’ in this area. I enjoyed it and the humbleness of the group.”

We thank Jamie Martin, Vanessa Watson, Eva Miller, Barb Grinsell, Ezra Tassone, Chloe Hope Johnstone, and Matt Fletcher for so readily agreeing to take part in this workshop and for sharing so much of themselves with participants.

Expressions of interest are being invited for the next workshop to be held in early 2015. Please contact John Quintner: jqu33431@bigpond.net.au or Melanie Galbraith: MelanieG@arthritiswa.org.au


 

Making-Sense-of-Pain-workshop-flyer2Event Date

14th Nov 2014 to 15th Nov 2014

Time

08.30 – 4.30

Registration Closing Date

7th Nov 2014

Venue Information

Wyliie Arthritis Centre
17 Lemnos Street Shenton Park WA

On-site

About the venue
Lunch, morning and afternoon tea provided.

Contact

John Quintner & Melanie Galbraith
John: 0419956418 jqu33431@bigpond.net.au
Melanie: 0405963658  MelanieG@arthritiswa.org.au

Registration

General
$375.00 ea

Event Description

What sets “Making Sense of Pain” apart from other Pain Management workshops and seminars? We show you how to put this information into practice and improve your interactions with patients to ensure more positive outcomes.

This workshop is dedicated to the memory of Robert Elvey [1942-2013], a WA pioneering physiotherapist (pictured on the flyer).

Event Information

  1. Other courses provide the ‘What’ – i.e. information about evidence-based management of people with chronic pain. We also provide the ‘How’ – how to put this information into practice.
  2. We show you how to improve your interactions with patients to ensure more positive outcomes.
  3. We involve ‘pain champions’ – real people with chronic pain.
  4. Our workshop is highly inter-interactive.
  5. You will have access to an on-line questionnaire.
  6. You can join a networking group of past workshop attendees and presenters.

On completion of the course the participant will be able to:

  • (a) understand the current status of Pain Medicine theory in terms of its relative strengths and weaknesses
  • (b) understand the potential role of dysregulated stress response systems in the symptomatology of chronic widespread pain (Fibromyalgia Syndrome)
  • (c) accurately assess the impact of chronic pain on the individual across social, psychological, medical and functional parameters (including standardized outcome measures)
  • (d) promote behavioural change and institute self-management strategies (participants will be exposed to motivational interviewing, mindfulness practice, relaxation, and techniques of education to promote behavioural change) and to know when referral to other health professionals might be indicated
  • (e) have a deeper understanding of the subjective experience of the person in pain
  • (f) be more aware of his/her personal attitude(s) and communication style when interacting with chronic pain sufferers
  • (g) understand the centrality of the therapeutic alliance in effecting positive change outcomes
  • (h) better communicate with the person in pain based on an understanding of empathy in all its connotations
  • (i) provide a person in pain with an accurate, empathic, and confident explanation of their predicament

Read about the presenters on the full post at Arthritis & Osteoporosis WA’s website: www.arthritiswa.org.au
View images from Making Sense of Pain 2013.

Pudendal Neuralgia Conference for Physicians, Waltham US

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(Excerpt and bookings pudendalassociation.org)

Pudendal Neuralgia Conference

A LIVE CME ACTIVITY FOR PHYSICIANS
Saturday September 27, 2014
7:30 AM-5:30 PM
The Conference Center at Waltham Woods, Waltham, MA

8 credits, Category 1
Pudendal Neuralgia Association, Inc. poster

Blog | Sexology 101 | The Internal Clitoris

Author:

Museum Of Sex Img_0927Hallelujah! Pardon my pun here, especially as I’m preaching sexuality on a Sunday morning but finally, here is some thorough research and attention for the clitoris. Thank you Louise Smith for sending this link to me.. I think it’s essential info for everyone, not just women with PN. Thank you melodiousmsm for writing this and thank you to artist and sex educator, Betty Dodson for the fabulous artwork.

(excerpt from The Internal Clitoris. Read full post here)

…Let’s also remember, female orgasm is not solely about the clitoris and vagina either. It is far more complex and also involves the workings of multiple nerves, tissues, muscles, reflexes, and mental effort. Some women can think themselves to orgasm. Others can orgasm simply by flexing their pelvic muscles. Considering all the components involved plus the variability of human beings and their anatomies, it’s extremely important to remember no two people are the same. What works for one woman may not work for another. In other words, it’s all custom under the hood….

…What really blows my mind is the plethora of misinformation that exists in textbooks, professional medical guides, and on the internet. Take for example, in one of my undergraduate textbooks titled Understanding Human Sexuality, the clitoris is depicted merely as just the glans. The sad fact is it wasn’t until the 1990’s that researchers began using MRI to study the internal structure of the clitoris. By then, the intricate details of the penis were already well-known.

(Some of you may find these drawings explicit. You may also have to turn off your ‘safety’ to watch this)

(more…)

National Pain Week 2014

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(Excerpt from Chronic Pain Australia’s nationalpainweek.org.au)

Welcome to National Pain Week 2014National Pain Week

This year we celebrate National Pain Week by creating awareness that PAIN IS AGELESS. Thank you to everyone who has completed our Snapshot Survey – look out for the results during NPW14 when we publish the findings.

Watch out for the Big Red London Bus which will be cruising around Sydney in the run up to the NPW14 Pain is Ageless Rally – the Chronic Pain Australia crew will be on hand with free stuff, fact sheets and more. Jump on the bus and join us for the 24 July 12 -2pm Martin Place rally in Sydney to be part of a Q & A with a range of people who are affected by the problem as well as clinicians and researchers.

You can register for our 10,000 faces of pain gallery which is building year by year – either online or at the rally. Lots of fun, information, music and things to do.

(more…)

Arthritis & Osteoporosis WA, Making Sense of Pain, 7-8th March

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Update March 13, 2014

The Inter-disciplinary Workshop for Health Professionals, Making Sense of Pain, was organised by Dr John Quintner (Pain Medicine physician) and Melanie Galbraith (Physiotherapist).

The Workshop was sponsored by Arthritis and Osteoporosis WA and held at the Wyllie Arthritis Centre, 7th and 8th March 2014.

Key presenters were John, Melanie, Mary Roberts (Psychologist), Jane Muirhead (Occupational Therapist) and Vance Locke (Academic Psychologist) were key presenters.

Vanessa Watson and Eva Miller were our two Pain Champions who told their stories and engaged with the Health Professionals on the second day of the workshop.

Pain champion Eva, and group
Pain champion Vanessa Watson
Vance Locke presenting
Jane Muirhead, (Occupational Therapist)
Mary Roberts (Psychologist) and Melanie Galbraith (Physiotherapist)
[table id=1 /]

Event Description

The aim of this workshop is to provide physiotherapists and other health professionals with an opportunity to effectively translate their knowledge and skills into clinical practice. Of equal importance is that they become aware of their own beliefs and attitudes to people in pain and the potential for these attributes to colour therapeutic relationships and influence outcomes. (more…)

Beyond Basics Physical Therapy

Author:

(Excerpt from the beyondbasicspt.wordpress.com blog)

amy steinAmy Stein is the founder and a practitioner of Beyond Basics Physical Therapy in NYC, specializing in pelvic floor dysfunction, pelvic pain, women’s health, and manual therapy for men, women, and children while taking a holistic approach to each patient’s entire well-being. She is the author of Heal Pelvic Pain, an easy-read, self-help book. Amy is also a contributor to the medical textbook, Female Sexual Pain Disorders: Evaluation and Management, and serves on the board of the International Pelvic Pain Society, since 2007. She is a well recognized expert in her field, lectures nationwide, and has been interviewed in media outlets ranging from the medical segments of popular TV news shows, like ABC’s 20/20 to such newspapers as the New York Daily News to internet sites like http://www.ourgyn.com. She is also an editor of painchannel.com and a member of the NVA, ICA, as well as many other organizations. Amy received her Masters in Physical Therapy from Nova Southeastern University and is currently working towards her Doctorate in Physical Therapy.

Beyond Basics Physical Therapy, located conveniently in Midtown Manhattan on 46th street between 6th and 7th Avenue, has been committed to providing integrated and individualized rehabilitation since 2003. Our highly specialized staff provides comprehensive care to patients with a variety of pelvic pain and orthopedic conditions. (more…)

Back to yoga, thanks to Dustienne Miller’s, Your Pace Yoga

Author:

Dustienne MillerThis is truly a thrilling post for me to finally be writing. I used to practise yoga 4 mornings a week for at least 45 minutes pre injury. After my warm up poses, my spine unravelling was eight minutes in shoulder stand, followed by another eight minutes in plough pose before Savasana (rest). So you can imagine how many times I’ve tried to get back to my yoga since knowing the benefits. i was always unsuccessful until I came across Dustienne’s Your Pace Yoga dvd. I still can’t work out what’s different, of course I’ve made progress but that can’t be the answer as it wasn’t so long ago I attempted cat/cow pose only to begin flaring. I’d say Dustienne’s sequence and breathing is definitely focused on opening, lengthening and creating space in the pelvis, it just feels great and I’m happy to report I’ve managed it once a week for over a month now. I know that’s not huge, but I’m blowing my trumpets that I could sustain one of the routines. I hope to get to both but my struggle lying on my back may prevent me.

Regardless, I don’t plug a lot on my website but I thought this was worth it as everyone can try it at their own pace and there’s just something about Dustienne that is authentic and really calming, not to mention she knows her pelvis! Here’s some more info: (more…)

Robert Wanek, Creating awareness for Chronic Prostatitis and Pelvic Pain Conditions

Author:

I cyber met another amazing human being, Robert Wanek, who sadly has his own Chronic Prostatitis and Pelvic Pain story to tell… and so brilliantly does he say it, I just had to include it on my website.

You can follow Robert’s journey on his website: malepelvicpain.weebly.com

Robert, I hope you escape this world of pain forever.

Anyone suffering from prostatitis, epididymitis, pelvic pain, orchalgia, or related conditions; follow my blog. Share your stories. On my blog is a macro of my journey over the past 6 months dealing with idiopathic Pelvic Pain. 4 doctors, countless tests, no progress. To see where I’m at now you can check my blog as I will be updating daily with PT appointments, holistic treatments, lifestyle changes, and of course updates on the pain. I hope to share stories from other sufferers and any treatments and research coming out in the near future.

All copyrights to the rightful owners. I do not own the song in this video. This video is for non-profit educational purposes, dealing with a major health issue.

The latest pain definitions from Prof Lorimer Moseley

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Lorimer Moseley Presentations-03Lrg

Getting a grip on pain and the brain – Professor Lorimer Moseley – Successful Ageing Seminar 2013

Always great to hear the latest definitions and discoveries regarding pain from THE pain Professor, Lorimer Moseley.

It still stumps me however, to hear how ‘intelligent’ the brain is but yet how stupid its ‘brilliance’ is of learning pain tunes. In fact I’m not sure I’m stumped, I’d rather call it disbelief that all this horrific pain I’ve endured the past 6.5 years can be a tune… a learned behaviour. I certainly don’t dismiss the research and of course we’ll all be examples of different definitions of pain but in my tail’s tip, I believe my undiagnosed and unrecognised injury to my pudendal nerve injury, and the lack of treatment, has created a great wound that if not scarred will need its time to heal.

Yes, I pace up my activity (or is it better put that I juggle it well), but now that I am having appropriate treatment, I’m going to hold the thought that I may be nursing my wound towards healing. I am happy however, to let anyone who swears by ‘pain tunes’ to believe that I’m also slowly changing my brain’s pain signal and that the process is more about plasticity.

Whatever floats your boat I say, so long as it leads to cure.

Watch Lorimer’s presentation: (more…)

The Pelvic Pain Library

Author:
The Drawing Wall At Ooi

Here is my attempt to gather all references I’ve come across or that I refer to on my website for Chronic Pelvic Pain. Clearly nowhere near all the references that exist but at least one ‘library’ location with a bundle of great material (and one organised website!). If you’ve come across a resource that you think should be included, please contact me and if you are an author and have an update or other information to provide, I’d love to hear from you.

I know how frustrating it is to have to sift through pages and pages of the internet, I thought this could be of help to pain sufferers who simply don’t have the up time.

And a huge thanks to everyone who replied and supplied me their updated material. Obviously I plan for this page to grow and somehow I will keep it in some kind of legible order. Currently in alpha order by author and title of their publications, perhaps as it grows, we can list by subject. (more…)

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What is Pudendal Neuralgia (PN)?

Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggrevated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

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