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{Pain}Train – Patient health profiling

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About {Pain}Train — where it came from and why it works

Download this information in pdf format

Our mission

{Pain}Train’s mission is to enable patients with chronic pain to record and store all relevant information about their pain, and to easily share that information with medical practitioners and others they choose to share it with.

Vision

{Pain}Train’s vision is to empower health practitioners and their patients, to improve the chronic pain journey.

What you can do on pain-train.com.au

Users of {Pain}Train can:

Place their medical information on the site — and edit it, review it, update it, etc;

pt-body-map

(Image 1) Click on the body-chart to show the places the patient has pain, then click from options to describe and record the type and intensity of the pain;

access_token_slider(Image 2) Allow and revoke access so that anyone — most
likely, a health care practitioner, family member, or carer — to view their online {Pain}Train profile.

(Image 3) Record their mood and whether they are consuming or not consuming medication daily for a sample.

(Image 4) Keep an online record of how they’re going, what appointments they have attended, upload their x-rays and reports, and enter details about what they can and can’t do — for example: make a cup of tea, walk the dog, sit at a desk for an hour, or 4 hours.

pt-journey

{Pain}Train’s Yearly fee of $49

Each use of the site is free. And the user can have a free one-month trial of the site.

The {Pain}Train user pays an annual fee of $49 (Australian dollars).  The first payment is due on the first of:

  • the end of their one-month free trial period; or
  • when they first electronically invite anyone — most likely, a health care practitioner, family member, or carer — to view their online {Pain}Train profile.

The fee includes the Australian Goods and Services tax which applies to Australian residents.

Download or read our pricing structure…

Why {Pain}Train is different

Many online medical record systems have failed — despite significant government and corporate spending — due to concerns about privacy, “function creep”, lack of patient control, and more.

“Empowering patients with resources and encouraging them to participate actively in care/planning – so vital.” – Dr Nick Christelis Director, Victoria Pain Specialists
MBBCH, FRCA, FFPMRCA, FANZCA, FFPMANZCAPain Specialist Physician & Anaesthetist

{Pain}Train is different from the other online medical records storage sites because it springs from the experience of Soula Mantalvanos, a patient with chronic pain. Soula and her husband Theo founded {Pain}Train in 2014.

Feedback

2
  • Carl Giardinazzo

    Dear Soula,
    I have just watched your documentary and scanned your website and I am somewhat overwhelmed and a bit emotional re your story to be honest. I feel like I need to give you a hug. We have a lot in common. I feel compelled to write and to offer you something – I don’t know what, but something. I know how it feels – you have paid over and over and over again for something others get for free. You are still paying. I am angry with those muppets at WorkCover. I wonder if your issue has been resolved in any way? Maybe I can help. I have had some experience in this area. Are you in Melbourne – maybe we can meet.
    Kindest regards
    Carl Giardinazzo
    Director
    Pelvic Pain Foundation of Australia.

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What is Pudendal Neuralgia (PN)?

Most simply put PN is Carpal Tunnel in the pelvis/buttocks. Compression of the Pudendal Nerve occurs after trauma to the pelvis and is aggrevated with pressure. The pain is often described as a toothache like pain, with spasms, sensations of tingling, numbness, or burning. It can be very debilitating.

Pain Train my online health record

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